September 22, 1988, Argued
April 26, 1990, Decided
SUBSEQUENT HISTORY: As Corrected April 26, 1990
PRIOR HISTORY:
[**1] Appeal from the Superior Court of the District of Columbia, Hon. Emmet G.
Sullivan, Trial Judge, ON HEARING EN BANC.
DISPOSITION: Vacated and remanded.
COUNSEL: Robert E. Sylvester, for appellant
A.C.
Barbara F. Mishkin, for appellee L.M.C.
Vincent C. Burke, III, for appellee George Washington University.
Carter G. Phillips, for the American Medical Association, the American College
of Obstetricians and Gynecologists, and the Medical Society of the District of
Columbia, as amici curiae.
Frederick D. Cooke, Jr., Corporation Counsel, and Charles L. Reischel, Deputy
Corporation Counsel, filed a statement in lieu of brief, for appellee District
of Columbia.
Sarah E. Burns, Alison C. Wetherfield, Martion B. Stillson, and Dale Schroedel
filed a brief, for the NOW Legal Defense and Education Fund, et al., as amici
curiae.
Lawrence J. Nelson and H. Westley Clark filed a brief, for the American Society
of Law and Medicine, et al., as
amici curiae.
Loren Kieve, John H. Hall, Mary Sue Henifin, Walter J. Walsh, James B. Henly,
and Nadine Taub
[**2] filed a brief, for the American Public Health Association as amicus curiae.
James M. Thunder, Clarke D. Forsythe, Ann-Louise Lohr, and Edward R. Grant
filed a brief, for the Americans United for Life Legal Defense Fund as amicus
curiae.
Mark E. Chopko and Helen M. Alvare filed a brief, for the United States
Catholic Conference as amicus curiae.
Giles R. Scofield, III, and Nancy D. Polikoff filed a memorandum, for Concern
for Dying as amicus curiae.
Fenella Rouse, Elena Cohen, M. Rose Gasner, and Mark D. Schneider filed a
memorandum, for the Society
for the Right to Die as amicus curiae.
JUDGES: Rogers, Chief Judge*, Newman, Ferren, Belson, Terry, Steadman, and Schwelb,
Associate Judges, and Mack, Senior Judge. ** Opinion for the court by Associate
Judge Terry. Opinion by Associate Judge Belson, concurring in part and
dissenting in part.
* Judge Rogers was an Associate Judge of the court at the time of argument. Her
status changed to Chief Judge on November 1, 1988.
** Judge Mack was an Associate Judge of the court at the time of argument. She
was commissioned as a Senior Judge on December 1, 1989.
OPINIONBY: TERRY
OPINION:
[*1237]
This case comes before the court for the second time. In
In re A.C., 533 A.2d 611 (D.C. 1987), a three-judge motions division denied a motion to stay an order of the trial
court which had authorized a hospital to perform a
caesarean section on a dying
woman in an effort to
save the life of her
unborn child. The operation was performed, but both the mother and the child died. A few
months later, the court ordered the case heard en banc and vacated the opinion
of the motions division.
In re A.C., 539 A.2d 203 (D.C. 1988). Although the motions division recognized that,
[**3] as a practical matter, it
"decided the entire matter when [it] denied the stay,"
533 A.2d at 613, the en banc court has nevertheless heard the full case on the merits. n1
n1 Strictly speaking, this is not a rehearing but an initial hearing en banc.
The motions division heard only the application for a stay, which it denied and
which is now moot. The en banc court, however, has before it the entire appeal
on the merits, which no division of the court has ever considered.
We are confronted here with two profoundly difficult and complex issues. First,
we must determine who has the right to decide the course of
medical treatment for a
patient who, although near death, is
pregnant with a
viable
fetus. Second, we must establish how that decision should be made if the
patient cannot make it for herself -- more specifically, how a court should proceed
when faced with a
pregnant
patient,
in extremis, who is apparently incapable of making an
informed decision regarding medical care for herself and her
fetus. We hold that in virtually all cases the question of what is to be done is to
be
decided by the
patient -- the
pregnant
woman -- on behalf of herself and the
fetus. If the
patient is
incompetent
[**4] or otherwise unable to give an
informed consent to a proposed course of
medical treatment, then her decision must be ascertained through the procedure known as
substituted judgment. Because the trial court did not follow that procedure, we vacate its
order and remand the case for further proceedings. n2
n2 We observe nevertheless that it would be far better if judges were not
called to
patients' bedsides and required to make quick decisions on issues of life and death.
Because judgment in such a case involves complex medical and ethical issues as
well as the application of legal principles, we would urge the establishment --
through legislation or otherwise -- of another tribunal to make these
decisions, with limited opportunity for judicial review.
See
Satz v. Perlmutter, 379 So. 2d 359, 360 (Fla. 1980);
In re Conroy, 98 N.J. 321, , 486 A.2d 1209, 1221 (1985);
In re Hamlin, 102 Wash. 2d 810, , 689 P.2d 1372, 1378-1379 (1984).
We also emphasize that our decision today is the result of considerable
deliberation and that we have enjoyed two luxuries unavailable to the trial
court: ample time to decide the case, and extensive briefs and oral argument
from the parties and several
amici. The trial judge had no such advantage. He was called in during the worst of
emergencies, with little time for reflection, to make a decision which under
the best of circumstances is extraordinarily difficult. Although we conclude
that his decision must be set aside, we nevertheless commend him for the
painstaking and conscientious manner in which he performed the task before him.
This case came before the trial court when George Washington University
Hospital petitioned the emergency judge in chambers for
declaratory relief as to how it should treat its
patient,
A.C., who was close to death from cancer and was twenty-six and one-half weeks
pregnant with a
viable
fetus. After a hearing lasting approximately three hours, which was held at the
hospital (though not in
A.C.'s room), the court ordered that a
caesarean section be performed on
A.C. to
deliver the
fetus. Counsel for
A.C. immediately sought a stay in this court, which was unanimously denied by a
hastily assembled division of three judges.
In re A.C., 533 A.2d 611 (D.C. 1987). The
caesarean was performed, and a
baby girl, L.M.C., was delivered. Tragically, the child died within two and
one-half hours, and the mother died two days later.
Counsel for
A.C. now maintain that
A.C. was competent and that she made an informed choice not to have the
caesarean performed. Given this view of the facts, they argue that it was error for the
trial court to weigh the state's interest in preserving the potential life of a
viable
fetus against
A.C.'s interest in having her decision respected. They argue further
[**6] that, even if the
substituted judgment procedure had been followed, the evidence would necessarily show that
A.C. would not have wanted the
caesarean section. Under either analysis, according to these arguments, the trial court
erred in subordinating
A.C.'s right to bodily integrity in favor of the state's interest in potential
life. Counsel for the hospital and for L.M.C. contend, on the other hand, that
A.C. was
incompetent to make her own medical decisions and that, under the
substituted judgment procedure, the evidence clearly established that
A.C. would have
consented to the
caesarean. In the alternative, counsel for L.M.C. argues that even if L.M.C.'s interests
and those of the state were in
conflict with
A.C.'s wishes, it was proper for the trial court to balance their interests and
resolve the conflict in favor of surgical intervention.
We do not accept any of these arguments because the evidence, realistically
viewed, does not support them.
II
A.C. was first diagnosed as suffering from cancer at the age of thirteen. In the
ensuing years she underwent major
surgery several times, together with multiple radiation treatments and chemotherapy.
A.C. married when she was twenty-seven,
[**7] during a period of remission, and soon thereafter she became
pregnant. She was excited about her
pregnancy and very much wanted the child. Because of her medical history, she was
referred in her fifteenth week of
pregnancy to the high-risk
pregnancy clinic at George Washington University Hospital.
On Tuesday, June 9, 1987, when
A.C. was approximately twenty-five weeks
pregnant, she went to the hospital for a scheduled check-up. Because she was
experiencing pain in her back and shortness of
breath, an x-ray was taken, revealing an apparently inoperable tumor which
nearly filled her right lung. On Thursday, June 11,
A.C. was admitted to the hospital as a
patient. By Friday her condition had temporarily improved, and when asked if she
really wanted to have her
baby, she replied that she did.
Over the weekend
A.C.'s condition worsened considerably. Accordingly, on Monday, June 15, members of
the medical staff treating
A.C. assembled, along with her family, in
A.C.'s room. The
doctors then informed her that her illness was terminal, and
A.C. agreed to palliative treatment designed to extend her life until at least her
twenty-eighth week of
pregnancy. The
"potential outcome [for] the
fetus,"
[**8] according to the
doctors, would be much better at twenty-eight weeks than at twenty-six weeks if it were
necessary to
"intervene."
A.C. knew that the palliative treatment she
[*1239] had chosen presented some increased risk to the
fetus, but she opted for this course both to prolong her
life for at least another two weeks and to maintain her own comfort. When asked
if she still wanted to have the
baby, A. C. was somewhat equivocal, saying
"something to the effect of 'I don't know, I think so.'" As the day moved toward evening,
A.C.'s condition grew still worse, and at about 7:00 or 8:00 p.m. she
consented to intubation to facilitate her breathing.
The next morning, June 16, the trial court convened a hearing at the hospital
in response to the hospital's request for a declaratory judgment. The court
appointed counsel for both
A.C. and the
fetus, and the District of Columbia was permitted to intervene for the
fetus as
parens patriae. The court heard testimony on the facts as we have summarized them, and
further testimony that at twenty-six and a half weeks the
fetus was
viable,
i.e., capable of sustained life outside of the mother, given artificial aid. A
neonatologist,
Dr. Maureen
[**9] Edwards, testified that the chances of
survival for a twenty-six-week
fetus delivered at the hospital might be as high as eighty percent, but that this
particular
fetus, because of the mother's medical history, had only a fifty to sixty percent
chance of
survival. n3 Dr. Edwards estimated that the risk of substantial impairment for the
fetus, if it were delivered promptly, would be less than twenty percent. However, she
noted that the
fetus' condition was worsening appreciably at a rapid rate, and another
doctor -- Dr. Alan Weingold, an obstetrician who was one of
A.C.'s treating physicians -- stated that any delay in delivering the child by
caesarean section lessened its chances of
survival.
n3 Dr. Edwards was testifying as an expert, but not as a treating physician. Up
to that point she had had
"no direct involvement" with either
A.C. or her family, but she did hear the testimony of the treating physicians who
were familiar with
A.C.'s condition.
Regarding
A.C.'s ability to respond to questioning and her prognosis, Dr. Louis Hamner,
another treating obstetrician, testified that
A.C. would probably die within twenty-four hours
"if absolutely nothing else is done . . . . As far as
[**10] her ability to interact, she has been heavily sedated in order to maintain her
ventilatory function. She will open her eyes sometimes when you are in the
room, but as far as her being able to . . . carry on a meaningful-type
conversation . . . at this point, I don't think that is reasonable." When asked whether reducing her medication to
"permit recovery of enough cognitive function on her part that we could get any
sense from her as to what her preference would be as to therapy," Dr. Hamner replied,
"I don't think so. I think her respiratory status has deteriorated to the point
where she is [expending] an enormous amount of energy just to keep the heart
going." Dr. Weingold, asked the same question, gave a
similar answer: that
A.C.'s few remaining hours of life
"will be shortened by attempting to raise her level of consciousness because
that is what is keeping her, in a sense, physiologically compliant with the
respirator. If you remove that, then I think that will shorten her
survival."
There was no evidence before the court showing that
A.C.
consented to, or even contemplated, a
caesarean section before her twenty-eighth week of
pregnancy. There was, in fact, considerable dispute
[**11] as to whether she would have
consented to an immediate
caesarean
delivery at the time the hearing was held.
A.C.'s mother opposed surgical intervention, testifying that
A.C. wanted
"to live long enough to hold that
baby" and that she expected to do so,
"even though she knew she was terminal." Dr. Hamner testified that, given
A.C.'s medical problems, he did not think she would have chosen to
deliver a child with a substantial degree of impairment. Asked whether
A.C. had been
"confronted with the question of what to do if there were a choice that
ultimately had to be
made between her own life expectancy and that of her
fetus," he replied that the question
"was addressed [but] at a later gestational age. We had talked about the
possibility at twenty-eight weeks, if she had to be intubated, if this was a
terminal event, would we intervene, and the expression was yes, that we would,
because we felt at
[*1240] twenty-eight weeks we had much more to offer as far as taking care of the
child." Finally, Dr. Hamner stated that
"the department as a whole" concluded that
"we should abide by the wishes of the family." Dr. Lawrence Lessin, an oncologist and another of
A.C.'s treating physicians, testified
[**12] that in meetings with
A.C. he had heard nothing to indicate that, if faced with the decision, she would
have refused permission for a
caesarean section. Dr. Weingold opposed the operation because he believed
A.C. had not seriously considered that she might not survive the birth of her
baby. Dr. Weingold made explicit what was implicit in Dr. Hamner's testimony: that
"in dealing with her, a
message that was sent to her was that the earliest we would feel comfortable in
intervening, should there be indication as to either maternal or
fetal grounds, would be twenty-eight weeks."
After hearing this testimony n4 and the arguments of counsel, the trial court
made oral findings of fact. It found, first, that
A.C. would probably die, according to uncontroverted medical testimony,
"within the next twenty-four to forty-eight hours"; second, that
A.C. was
"pregnant with a twenty-six and a half week
viable
fetus who, based upon uncontroverted medical testimony, has approximately a fifty to
sixty percent chance to survive if a
caesarean section is performed as soon as possible"; third, that because the
fetus was
viable,
"the state has [an] important and legitimate interest in protecting the
potentiality
[**13] of human life"; and fourth, that there had been some testimony that the operation
"may very well hasten the death of [A.C.]," but that there had also been testimony that delay would greatly increase the
risk to the
fetus and that
"the prognosis is
not great for the
fetus to be delivered post-mortem. . . ." Most significantly, the court found:
The court is of the view that it does not clearly know what [A.C.'s] present views are with respect to the issue of whether or not the child
should live or die. She's presently unconscious. As late as Friday of last
week, she wanted the
baby to live. As late as yesterday, she did not know for sure.
Having made these findings of fact and conclusions of law, and expressly
relying on
In re Madyun, 114 Daily Wash. L. Rptr. 2233 (D.C. Super. Ct. July 26, 1986), n5 the court
ordered that a
caesarean section be performed to
deliver
A.C.'s child.
The court's decision was then relayed to
A.C., who had regained consciousness. When the hearing reconvened
[**14] later in the day, Dr. Hamner told the court:
I explained to her essentially what was going on. . . . I said it's been
deemed we should intervene on behalf of the
baby by
caesarean section and it would give it the only possible chance of it living. Would you
agree to this procedure?
She said yes. I said, do you realize that you may not survive the surgical procedure?
She said yes. And I repeated the two questions to her again [and] asked her did she
understand.
She said yes. [Emphasis added.]
When the court suggested moving the hearing to
A.C.'s bedside, Dr. Hamner discouraged the court from doing so, but he and Dr.
Weingold, together with
A.C.'s mother and husband, went to
A.C.'s room to confirm her consent to the procedure. What happened then was
recounted to the court a few minutes later:
THE COURT: Will you bring us up to date? Did you have a conversation with [A.C.]?
DR. WEINGOLD: I did not.
I observed the conversation between Dr. Hamner and [A.C.]. Dr. Hamner went into the room to attempt to verify his previous discussion
with the
patient, with the
patient's husband at her right hand and her mother at her left hand. He, to my
satisfaction, clearly communicated with [A.C.]. She
[**15] understood.
THE COURT: You could hear what the parties were saying to one another?
[*1241] DR. WEINGOLD: She does not make sound because of the tube in her windpipe. She
nods and she mouths words. One can see what she's saying rather readily. She
asked whether she would survive the operation. She asked [Dr.] Hamner if he
would perform the operation. He told her he would only perform it if she
authorized it but it would be done in any case. She understood that. She then
seemed to pause for a few moments and then very clearly mouthed words several
times,
I don't want it done. I don't want it done. Quite clear to me.
I would obviously state the obvious and that is this is an environment in
which, from my perspective as a physician, this would
not be an
informed consent one way or the other. She's under tremendous stress with the family on both
sides, but I'm satisfied that I heard clearly what she said.
THE COURT: Dr. Hamner, did you wish to elaborate?
DR. HAMNER: That's accurate. I noticed she was much more alert than she had
been earlier in the day and was responding to the nurses in the room as well as
to all the physicians and went through the same sequence Dr. Weingold noted.
[Emphasis
[**16] added.]
Dr. Weingold later qualified his opinion as to
A.C.'s ability to give an
informed consent, stating that he thought the environment for an
informed consent was non-existent because
A.C. was in intensive care, flanked by a weeping husband and mother. He added:
I think she's in contact with reality, clearly understood who Dr. Hamner was.
Because of her attachment to him [she] wanted him to perform the
surgery. Understood he would not unless she
consented and did not consent.
That is, in my
mind, very clear evidence that she is responding, understanding, and is capable
of making such decisions.
Dr. Hamner stated that the sedation had
"worn off enough for her to wake up to this state" and that
"the level of drugs in her body is much different from several hours ago." Consequently, despite
A.C.'s continued sedation, Dr. Weingold said that she was
"quite reactive," and Dr. Hamner concurred.
After hearing this new evidence, the court found that it was
"still not clear what her intent is" and again ordered that a
caesarean section be performed.
A.C.'s counsel sought a stay in this court, which was denied.
In re A.C., 533 A.2d 611, 613 (D.C. 1987). The operation took place,
[**17] but the
baby lived for only a few hours, and
A.C. succumbed to cancer two days later.
III
The reader may wonder why we are issuing an en banc
opinion in this case despite its apparent mootness. n6 The case is moot only in
the sense that the
surgery which was ordered in this case has been performed, and no decision of ours can
put the parties in the same position in which they found themselves before the
trial court's order was issued. Otherwise the case is not moot, because
collateral consequences will flow from any decision we make in this appeal.
n6 We do not revisit in this appeal the issue of whether this court is bound by
the case-or-controversy strictures of Article III of the Constitution.
See
Lee v. District of Columbia Board of Appeals & Review, 423 A.2d 210, 216-217 n.13 (D.C. 1980);
Kopff v. District of Columbia Alcoholic Beverage Control Board, 381 A.2d 1372, 1377-1378 & n.11 (D.C. 1977); D.C. Code
§
11-705(b) (1989).
The personal representative of
A.C.'s estate has filed an action separate from this appeal against the hospital,
based on the events leading to the trial court's order in this case. In these
circumstances we adhere to our prior decisions refusing
[**18] to dismiss an appeal as moot when resolution of the legal issues might affect
a separate action, actual or prospective, between the parties.
See
Kopff v. District of Columbia Alcoholic Beverage Control Board, supra note 6,
381 A.2d at 1378;
Saunders v. First National Realty Corp., 245 A.2d 836, 837 (D.C. 1968),
aff'd in relevant part
[*1242] sub nom.
Javins v. First National Realty Corp., 138 U.S. App. D.C. 369, 371 n.5, 428 F.2d 1071, 1073 n.5,
cert. denied,
400 U.S. 925, 27 L. Ed. 2d 185, 91 S. Ct. 186 (1970);
Brown v. Southall Realty Co., 237 A.2d 834, 835-836 (D.C. 1968);
cf.
Super Tire Engineering Co. v. McCorkle, 416 U.S. 115, 121-122, 40 L. Ed. 2d 1, 94 S. Ct. 1694 (1974). Any right of action that
A.C. may have had against the hospital as a result of the events that culminated in
the trial court's order has probably survived her and may still be asserted by
her estate (assuming that it is not otherwise subject to dismissal or barred
for other reasons).
See D.C. Code
§ 12-101 (1989) (survival statute).
Even if this case were truly moot and had no collateral consequences, we would
nevertheless elect to
hear it because what occurred here is
"capable of repetition, yet evading review."
Southern Pacific Terminal Co. v. ICC,
[**19] 219 U.S. 498, 515, 55 L. Ed. 310, 31 S. Ct. 279 (1911);
see
Lynch v. United States, 557 A.2d 580, 582-583 (D.C. 1989) (en banc);
United States v. Edwards, 430 A.2d 1321, 1324 n.2 (D.C. 1981) (en banc),
cert. denied,
455 U.S. 1022, 72 L. Ed. 2d 141, 102 S. Ct. 1721 (1982).
See generally
Alton & Southern Ry. v. International Ass'n of Machinists, 150 U.S. App. D.C. 36, 463 F.2d 872 (1972). The challenged action here is not just the trial court's order but the
hospital's handling of the
medical emergency, which necessarily was too short to be fully litigated, given
A.C.'s rapidly declining condition. Additionally, this is a suit for a declaratory
judgment, in which the plaintiff is not
A.C. but the hospital. Because the hospital operates a high-risk
pregnancy clinic, it will in all likelihood again face a situation in which a
pregnant but dying
patient is either incapable of consenting to treatment or affirmatively refusing
treatment. Indeed, any hospital in the District of Columbia may find itself in
the same situation, even one without a specialized facility for such
patients. There is thus a reasonable expectation that the challenged action in this
case --
i.e., the hospital's decision to seek judicial authorization for a medical
procedure
[**20] affecting a
pregnant
patient
in extremis -- may occur again.
See
Honig v. Doe, 484 U.S. 305, 108 S. Ct. 592, 601-602 & n6, 98 L. Ed. 2d 686 (1988). Accordingly, we conclude that we should entertain this appeal in the exercise
of our discretion, even assuming that it is partially or wholly moot.
IV
Although we decide this case on the merits of the legal issues, it is important
to remember that factual disputes dominate this controversy and determine how
the legal issues are framed. It is, of course, beyond dispute that the trial
court's findings of fact are binding on this court unless clearly erroneous.
D.C. Code
§ 17-305(a) (1989);
see, e.g.,
Bell v. Jones, 523 A.2d 982, 992 (D.C. 1986). Sitting as an appellate court, we cannot engage in fact-finding.
See
Harmatz v. Zenith Radio Corp., 265 A.2d 291, 292 (D.C. 1970). With these preliminary observations, we proceed to
address the issues as we understand them.
A.
Informed Consent and Bodily Integrity
A number of learned articles have been written about the propriety or
impropriety of court-ordered
caesarean sections.
E.g., Johnsen,
The Creation of
Fetal Rights: Conflicts with Women's Constitutional Rights to Liberty, Privacy, and
Equal Protection,
[**21]
95 YALE L.J. 599 (1986); Kolder, Gallagher
& Parsons,
Court-Ordered Obstetrical Interventions,
316 NEW ENG. J. MED. 1192 (1987) (hereafter
Obstetrical Interventions); Rhoden,
The Judge in the
Delivery Room: The Emergence of Court-Ordered
Caesareans,
74 CAL. L. REV. 1951 (1986); Robertson,
Procreative Liberty and the Control of Conception,
Pregnancy, and Childbirth,
69 VA. L. REV. 405 (1983). Commentators have also considered how medical decisions for
incompetent persons which may involve some detriment or harm to them should be made.
E.g., Pollock,
Life and Death Decisions: Who Makes Them and
by What Standards?,
41 RUTGERS L. REV. 505, 518-540 (1989); Robertson,
Organ Donations by
Incompetents and the
Substituted Judgment
[*1243] Doctrine,
76 COLUM. L. REV. 48 (1976). These and other articles demonstrate the complexity of medical intervention
cases, which become more complex with the steady advance of medical technology.
From a recent national survey, it appears that over the five years preceding
the survey there were thirty-six attempts to override maternal refusals of
proposed
medical treatment, and that in fifteen instances where court orders were sought to
[**22] authorize
caesarean interventions, thirteen such orders were granted.
Obstetrical Interventions, supra, 316 NEW ENG. J. MED. at 1192-1193.
Compare Goldberg,
Medical Choices During
Pregnancy: Whose Decision Is It Anyway?,
41 RUTGERS L. REV. 591, 609 (1989) (finding twelve such cases). Nevertheless, there is only one
published decision from an appellate court that deals with the question of
when, or even whether, a court may order a
caesarean section:
Jefferson v. Griffin Spalding County Hospital Authority, 247 Ga. 86, 274 S.E.2d 457 (1981).
Jefferson is of limited relevance, if any at all, to the present case. In
Jefferson there was a competent refusal by the mother to undergo the proposed
surgery, but the evidence showed that performance of the
caesarean was in the medical interests of both the mother and the
fetus. n7 In the instant case, by contrast, the evidence is unclear as to whether
A.C. was competent when she mouthed her apparent refusal of the
caesarean ("I don't want it done"), and it was generally assumed that while the
surgery would most likely be highly beneficial to the
fetus, it would be dangerous for the mother. Thus there was no clear maternal-fetal
conflict
[**23] in this case arising from a competent decision by the mother to forego a
procedure for the benefit of the
fetus. The procedure may well have been against
A.C.'s medical interest, but if she was competent and given the choice, she may
well have
consented to an operation of significant risk to herself in order to maximize her
fetus' chance for
survival. From the evidence, however, we simply cannot tell whether she would have
consented or not.
n7 Because the
patient in
Jefferson had a placenta previa which blocked the birth canal,
doctors estimated that without
caesarean intervention there was a ninety-nine percent chance that her full-term
fetus would perish and a fifty percent chance that the mother would die as well. The
mother was unquestionably competent to make her own treatment decisions, but
refused a
caesarean because of her
religious beliefs. A trial court gave custody of the
fetus to state human resources officials and ordered a
caesarean section; the Georgia Supreme Court denied the parents'
motion for a stay.
Thus our analysis of this case begins with the tenet common to all
medical treatment cases: that any person has the right to make an informed choice, if competent
[**24] to do so, to accept or forego
medical treatment. The doctrine of
informed consent, based on this principle and rooted in the concept of bodily integrity, is
ingrained in our common law.
See
Crain v. Allison, 443 A.2d 558, 561-562 (D.C. 1982);
Canterbury v. Spence, 150 U.S. App. D.C. 263, 271, 464 F.2d 772, 780,
cert. denied,
409 U.S. 1064, 34 L. Ed. 2d 518, 93 S. Ct. 560 (1972);
Schloendorff v. Society of New York Hospital, 211 N.Y. 125, , 105 N.E. 92, 93 (1914). Under the doctrine of
informed consent, a physician must
inform the
patient,
"at a minimum," of
"the nature of the proposed treatment, any alternative treatment procedures, and
the nature and degree of risks and benefits inherent in undergoing and in
abstaining from the proposed treatment."
Crain v. Allison, supra, 443 A.2d at 562 (footnote omitted). To protect the right of every person to bodily integrity,
courts uniformly hold that a surgeon who performs an operation without the
patient's consent may be guilty of a battery,
Canterbury v. Spence, supra, 150 U.S. App. D.C. at 274, 464 F.2d at 783, or that if the surgeon obtains an insufficiently
informed consent, he or she may be liable for negligence.
Crain v. Allison, supra,
[**25] 443 A.2d at 561-562. Furthermore, the right to
informed consent
"also encompasses a right to informed refusal."
In re Conroy, 98 N.J. 321, , 486 A.2d 1209, 1222 (1985) (citation omitted).
In the same vein, courts do not compel one person to permit a significant
intrusion
[*1244] upon his or her bodily integrity for the benefit of another person's health.
See, e.g.,
Bonner v. Moran, 75 U.S. App. D.C. 156, 157, 126 F.2d 121, 122 (1941) (parental consent required for skin graft from fifteen-year-old for benefit of
cousin who had been severely burned);
McFall v. Shimp, 10 Pa. D. & C. 3d 90 (Allegheny County Ct. 1978). In
McFall the court refused to order Shimp to donate bone marrow which was necessary to
save the life of his cousin, McFall:
The common law has consistently held to a rule which provides that one human
being is under no legal compulsion to give aid or to take action to
save another human being or to rescue. . . . For our law to
compel defendant to submit to an
intrusion of his body would change every concept and principle upon which our society is
founded. To do so would defeat the sanctity of the individual, and would impose
a rule which would know
[**26] no limits, and one could not imagine where the line would be drawn.
Id. at 91 (emphasis in original). Even though Shimp's refusal would mean death for
McFall, the court would not order Shimp to allow his body to be invaded. It has
been suggested that
fetal cases are different because a
woman who
"has chosen to lend her body to bring [a] child into the world" has an enhanced duty to assure the welfare of the
fetus, sufficient even to require her to undergo
caesarean
surgery. Robertson,
Procreative Liberty, supra, 69 VA. L. REV. at 456. Surely, however, a
fetus cannot have rights in this respect superior to those of a person who has
already been born. n8
n8 There are also practical consequences to consider. What if
A.C. had refused to comply with a court order that she submit to a
caesarean? Under the circumstances, she obviously could not have been held in civil
contempt and imprisoned or required to pay a daily fine until compliance.
Cf.
United States v. United Mine Workers, 330 U.S. 258, 304-306, 91 L. Ed. 884, 67 S. Ct. 677 (1947);
D.D. v. M.T., 550 A.2d 37, 43 (D.C. 1988). Enforcement could be accomplished only through physical force or its
equivalent.
A.C. would have to be fastened with restraints to the operating table, or perhaps
involuntarily rendered unconscious by forcibly injecting her with an
anesthetic, and then subjected to unwanted major
surgery. Such actions would surely give one pause in a civilized society, especially
when
A.C. had done no wrong.
Cf.
Rochin v. California, 342 U.S. 165, 169, 96 L. Ed. 183, 72 S. Ct. 205 (1952).
Courts have generally held that a
patient is competent to make his or her own medical choices when that
patient is capable of
"the informed exercise of a choice, and that entails an opportunity to evaluate
knowledgeably the options available and the risks attendant upon each."
Canterbury v. Spence, supra, 150 U.S. App D.C. at 271, 464 F.2d at 780. Thus competency in a case such as this turns on the
patient's ability to function as a decision-maker, acting in accordance with her
preferences and values.
United States v. Charters, 829 F.2d 479, 495-497 & nn. 23-26 (4th Cir. 1987) (competency to make treatment decisions depends on whether the
patient is able to make a rational choice based on
reason),
on rehearing en banc,
863 F.2d 302 (1988);
In re Farrell, 108 N.J. 335, , 529 A.2d 404, 413 & n.7 (1987) ("A competent
patient has a clear understanding of the nature of his or her illness and prognosis,
and of the risks and benefits of the proposed treatment, and has the capacity
to reason and make judgments about that information" (citations omitted));
accord, PRESIDENT'S COMMISSION FOR THE STUDY OF ETHICAL PROBLEMS IN MEDICINE AND
BIOMEDICAL AND BEHAVIORAL RESEARCH,
[**28] DECIDING TO FOREGO LIFE-SUSTAINING TREATMENT 123 (1983) (hereafter 1983
PRESIDENT'S COMMISSION REPORT); 1 PRESIDENT'S COMMISSION FOR THE STUDY OF
ETHICAL PROBLEMS IN MEDICINE AND BIOMEDICAL AND BEHAVIORAL RESEARCH, MAKING
HEALTH CARE DECISIONS 171-172 (1982) (hereafter 1982 PRESIDENT'S COMMISSION
REPORT).
This court has recognized as well that, above and beyond common law
protections, the
right to accept or forego
medical treatment is of constitutional magnitude.
See
In re Bryant, 542 A.2d 1216, 1218 (D.C. 1988);
In re Boyd, 403 A.2d 744, 748 (D.C. 1979);
In re Osborne, 294 A.2d 372 (D.C. 1972). Other courts also have found a basis in the Constitution for refusing
medical treatment.
E.g.,
United States v. Charters, supra, 829 F.2d at 491 & nn. 18-19
[*1245] ("the right to be free of unwanted physical invasions" is constitutionally protected);
Bee v. Greaves, 744 F.2d 1387, 1392-1393 (10th Cir. 1984) (same),
cert. denied,
469 U.S. 1214, 84 L. Ed. 2d 334, 105 S. Ct. 1187 (1985);
Tune v. Walter Reed Army Medical Hospital, 602 F. Supp. 1452, 1456 (D.D.C. 1985) (competent
patient has right to order removal of life-sustaining medical systems);
Rasmussen ex rel. Mitchell v. Fleming, 154 Ariz. 207,
[**29] , 741 P.2d 674, 681-682 (1987) (constitutional right of privacy encompasses the right to refuse
life-sustaining care);
see also
John F. Kennedy Memorial Hospital, Inc. v. Bludworth, 452 So. 2d 921, 923-926 (Fla. 1984) (incompetent persons have the right to discontinue life-sustaining care);
Superintendent of Belchertown State School v. Saikewicz, 373 Mass. 728, , 370 N.E.2d 417, 426 (1977) (incompetent person may decline
medical treatment for incurable illness);
In re Conroy, supra, 98 N.J. at
, 486 A.2d at 1222-1223, 1229 (competent persons have constitutional right to refuse
medical treatment, and persons who become
incompetent retain that right).
Decisions of the Supreme Court, while not explicitly recognizing a right to
bodily integrity, seem to assume that individuals have the right, depending on
the circumstances, to accept or refuse
medical treatment or other bodily invasion.
See, e.g.,
Winston v. Lee, 470 U.S. 753, 84 L. Ed. 2d 662, 105 S. Ct. 1611 (1985);
Schmerber v. California, 384 U.S. 757, 16 L. Ed. 2d 908, 86 S. Ct. 1826 (1966);
Rochin v. California, supra note 8;
cf.
Union Pacific Ry. v. Botsford, 141 U.S. 250, 251, 35 L. Ed. 734, 11 S. Ct. 1000 (1891) ("No right is held more
sacred, or is more carefully guarded,
[**30]
by the common law, than the right of every individual to the possession and control of his own
person, free from all restraint or interference of others, unless by clear and
unquestionable authority of law" (emphasis added)). In
Winston v. Lee, supra, a robbery suspect challenged the state's right to compel him to submit to
surgery for the removal of a bullet which was lodged in a muscle in his chest. The
Court noted that the proposed
surgery, which would require a general anesthetic,
"would be an 'extensive'
intrusion on respondent's personal privacy and bodily integrity" and a
"virtually total divestment of respondent's ordinary control over surgical
probing beneath his skin,"
470 U.S. at 764-765 (citation omitted), and held that, without the patient-suspect's consent, the
surgery was constitutionally impermissible. Nevertheless, even in recognizing a right
to refuse
medical treatment or
state-imposed
surgery, neither
Winston nor any other Supreme Court decision holds that this right of refusal is
absolute. Rather, in discussing the constitutional
"reasonableness of surgical
intrusions beneath the skin," the Court said in
Winston that the Fourth Amendment
"neither forbids nor
[**31] permits all such
intrusions. . . ."
Id. at 760 (citing
Schmerber v. California, supra);
see also
Jacobson v. Massachusetts, 197 U.S. 11, 49 L. Ed. 643, 25 S. Ct. 358 (1905) (upholding compulsory smallpox vaccinations over
religious objections). n9
n9 We think it appropriate here to reiterate and emphasize a point that the
motions division made in its opinion:
"that this case is not about abortion."
In re A.C., supra, 533 A.2d at 614. Supreme Court decisions on abortion, beginning with
Roe v. Wade, 410 U.S. 113, 35 L. Ed. 2d 147, 93 S. Ct. 705 (1973), have been read as recognizing
"a fundamental individual right to decide whether or not to beget or bear a
child."
Bowers v. Hardwick, 478 U.S. 186, 190, 106 S. Ct. 2841, 92 L. Ed. 2d 140 (1986) (citation omitted). That decisional right is not at issue here, for the record
makes clear that
A.C. sought to become
pregnant, that she wanted to bear her child as close to term as possible, and that
neither she nor anyone associated with her at any time sought to terminate her
pregnancy. The issue presented in this case is not whether
A.C. (or any
woman) should have a child but, rather, who should decide how that child should be
delivered. That decision involves the right of
A.C. (or any
woman) to accept or forego
medical treatment. The Supreme Court has not yet focused on this question in the context of a
pregnancy, and we are not so adept at
reading tea leaves as to predict how it might rule.
But see Robertson,
Procreative Liberty, supra, 69 VA. L. REV. at 451-452 (attempting such a prediction).
This court and others, while recognizing the right to accept or reject
medical treatment, have consistently held that the
[*1246] right is not absolute.
E.g.,
In re Boyd, supra, 403 A.2d at 749-750;
In re Osborne, supra, 294 A.2d at 374;
In re President & Directors of Georgetown College, Inc., 118 U.S. App. D.C. 80, 331 F.2d 1000,
cert. denied,
377 U.S. 978, 12 L. Ed. 2d 746, 84 S. Ct. 1883 (1964);
Rasmussen ex rel. Mitchell v. Fleming, supra, 154 Ariz. at
, 741 P.2d at 683;
In
re Conroy, supra, 98 N.J. at
, 486 A.2d at 1223;
cf.
Hughes v. United States, 429 A.2d 1339 (D.C. 1981) (upholding as reasonable a minor surgical
intrusion to remove bullets from a criminal suspect); n10
United States v. Crowder, 177 U.S. App. D.C. 165, 543 F.2d 312 (1976) (same),
cert. denied,
429 U.S. 1062, 50 L. Ed. 2d 779, 97 S. Ct. 788 (1977). n11 In some cases, especially those involving life-or-death situations or
incompetent
patients, the courts have recognized four countervailing interests that may involve the
state as
parens patriae: preserving life, preventing suicide, maintaining the ethical integrity of the
medical profession, and protecting third parties.
See, e.g.,
In re Boyd, supra, 403 A.2d at 748 n.9;
Brophy
[**33] v. New England Sinai Hospital, Inc., 398 Mass. 417, 431-433, 497 N.E.2d 626, 634 (1986);
Saikewicz, supra, 373 Mass. at
, 370 N.E.2d at 425;
In re Farrell, supra, 108 N.J. at
, 529 A.2d at 410-411. Neither the prevention of suicide n12 nor the integrity
of the medical profession n13 has any bearing on this case. Further, the
state's interest in preserving life must be truly compelling to justify
overriding a competent person's right to refuse
medical treatment.
In re Osborne, supra, 294 A.2d at 374-375;
Tune v. Walter Reed Army Medical Hospital, supra, 602 F. Supp. at 1455-1456. This is equally true for
incompetent
patients, who have just as much right as
competent
patients to have their decisions made while competent respected, even in a
substituted judgment framework.
See
In re Boyd, supra, 403 A.2d at 750;
John F. Kennedy Memorial Hospital, Inc. v. Bludworth, supra, 452 So. 2d at 923-924;
Saikewicz, supra, 373 Mass. at
, 370 N.E.2d at 427-428;
In re Conroy, supra, 98 N.J. at
, 486 A.2d at 1229.
n10 In the present case we are dealing with a
caesarean section, which is plainly a major surgical procedure. Our discussion of the
circumstances, if any, in which the
patient's wishes may be overridden presupposes a major bodily invasion. We express no
opinion with regard to the circumstances, if any, in which lesser invasions
might be permitted, or where the line should be drawn between
"major" and
"minor"
surgery.
[**34]
n11 Both
Hughes and
Crowder
antedate the Supreme Court decision in
Winston v. Lee, supra. We need not decide here whether
Winston would require a different result if
Hughes or
Crowder were to arise today.
n12 Courts have uniformly drawn a distinction between affirmatively acting to
commit suicide and merely allowing one's body to follow its natural course
without treatment.
E.g., In re Conroy, supra, 98 N.J. at
, 486 A.2d at 1224;
Saikewicz, supra, 373 Mass. at
n.11, 370 N.E.2d at 426 n.11.
n13 In this case no physician was ordered to perform
surgery or to provide any treatment against his or her will. Further, the current
ethical position of the medical community is that a physician treating a
pregnant
woman in effect has two
patients, the mother and the
fetus, and should assess the risks and benefits attendant to each in advising the
mother on the course of her treatment. American College of Obstetricians and
Gynecologists (ACOG) Ethics Committee Opinion No. 55;
Patient Choice: Maternal-Fetal Conflict (October 1987).
In those rare cases in which a
patient's right to decide her own course of treatment has been judicially overridden,
courts
[**35] have usually acted to vindicate the state's interest in protecting third
parties, even if in
fetal state.
See
Jefferson v. Griffin Spalding County Hospital Authority, supra (ordering that
caesarean section be performed on a
woman in her thirty-ninth week of
pregnancy to
save both the mother and the
fetus);
Raleigh Fitkin-Paul Morgan Memorial Hospital v. Anderson, 42 N.J. 421, 201 A.2d 537 (ordering blood transfusions over the objection of a Jehovah's Witness, in her
thirty-second week of
pregnancy, to
save her life and that of the
fetus),
cert. denied,
377 U.S. 985, 12 L. Ed. 2d 1032, 84 S. Ct. 1894 (1964);
In re Jamaica Hospital, 128 Misc. 2d 1006, 491 N.Y.S.2d 898 (Sup. Ct. 1985) (ordering the transfusion of blood to a Jehovah's Witness eighteen weeks
pregnant, who objected on
religious grounds, and finding that the
[*1247] state's interest in the not-yet-viable
fetus outweighed the
patient's interests);
Crouse Irving Memorial Hospital, Inc. v. Paddock, 127 Misc. 2d 101, 485 N.Y.S.2d 443 (Sup. Ct. 1985) (ordering transfusions as necessary over
religious objections to
save the mother and a
fetus that was to be prematurely delivered);
cf.
In re President & Directors of Georgetown College, Inc., supra,
[**36] 118 U.S. App. D.C. at 88, 331 F.2d at 1008 (ordering a transfusion,
inter alia, because of a mother's parental duty to her living minor children).
But see
Taft v. Taft, 388 Mass. 331, 446 N.E.2d 395 (1983) (vacating an order which required a
woman in her fourth month of
pregnancy to undergo a
"purse-string" operation, on the ground that there were no compelling circumstances to
justify overriding her
religious objections and her constitutional right of privacy).
What we distill from the cases discussed in this section is that every person
has the right, under the common law and the Constitution, to accept or refuse
medical treatment. n14 This right of bodily integrity belongs equally to persons who are
competent and persons who are not. Further, it matters not what the quality of
a
patient's life may be; the right of bodily integrity is not extinguished simply because
someone is ill, or even at death's door. To
protect that right against
intrusion by others -- family members,
doctors, hospitals, or anyone else, however well-intentioned -- we hold that a court
must determine the
patient's wishes by any means available, and must abide by those wishes unless there are
truly extraordinary
[**37] or compelling reasons to override them.
In re Osborne, supra. When the
patient is
incompetent, or when the court is unable to determine competency, the
substituted judgment procedure must be followed.
n14 We are not faced here with any legislative enactment in the area, and thus
we have no occasion to rule in any respect on constitutional considerations, if
any, that might affect statutory treatment of the various interests at issue.
From the record before us, we simply cannot tell whether
A.C. was ever competent, after being sedated, to make an
informed decision one way or the other regarding the proposed
caesarean section. The trial court never made any finding about
A.C.'s competency to decide. Undoubtedly, during most of the proceedings below,
A.C. was
incompetent to make a treatment decision; that is, she was unable to give an
informed consent based on her assessment of the risks and benefits of the contemplated
surgery. The court knew from the evidence that
A.C. was sedated and unconscious, and thus it could reasonably have found her
incompetent to render an
informed consent; however, it made no such finding. On the other hand, there was no clear
evidence that
A.C. was
[**38] competent to render an
informed consent after the trial court's initial order was communicated to her.
We think it is incumbent on any trial judge in a case like this, unless it is
impossible to do so, to ascertain whether a
patient is competent to make her own medical decisions. Whenever possible, the judge
should personally attempt to speak with the
patient and ascertain her wishes directly, rather than relying exclusively on hearsay
evidence, even from
doctors. n15
See
In re Osborne, supra, 294 A.2d at 374;
In re President & Directors of Georgetown College, Inc., supra, 118 U.S. App. D.C. at 87, 331 F.2d at 1007. It is improper to presume that a
patient is
incompetent.
United States v. Charters, supra, 829 F.2d at 495. We have no reason to believe that, if competent,
A.C. would or would not have refused consent to a
caesarean. We hold, however, that without a competent refusal from
A.C. to go forward with the
surgery, and without a finding through
substituted judgment that
A.C. would not have
consented to the
surgery, it was error for the trial court to proceed to a balancing analysis, weighing
the rights of
A.C. against the interests of the state.
n15 We recognize, of course, that this will not always be feasible. Our
expression of a preference for personal observation by a trial judge
"whenever possible" should not be construed as a criticism of the trial judge
in this case for failing to move the hearing to
A.C.'s bedside.
[*1248] There are two additional arguments against overriding
A.C.'s objections to
caesarean
surgery. First, as the American Public Health Association cogently states in its
amicus curiae brief:
Rather than protecting the health of women and children, court-ordered
caesareans erode the element of trust that permits a
pregnant
woman to communicate to her physician -- without fear of reprisal -- all information
relevant to her proper diagnosis and treatment. An even more serious
consequence of court-ordered intervention is that it drives women at high risk
of complications during
pregnancy and childbirth out of the health care system to avoid coerced treatment. n16
Second, and even more compellingly, any judicial proceeding in a case such as
this will ordinarily take place -- like the one before us here -- under time
constraints so pressing that it is
difficult or impossible for the mother to communicate adequately with counsel,
or for counsel to organize an effective factual and legal presentation in
defense of her liberty and privacy interests and bodily integrity. Any
intrusion implicating such basic values ought not to be lightly undertaken when the
mother not only is precluded from conducting
[**40] pre-trial discovery (to which she would be entitled as a matter of course in
any controversy over even a modest amount of money) but also is in no position
to prepare meaningfully for trial. As one commentator has noted:
The procedural shortcomings rampant in these cases are not mere technical
deficiencies. They undermine the authority of the decisions themselves, posing
serious questions as to whether judges can, in the absence of genuine notice,
adequate representation, explicit standards of proof, and right of appeal,
realistically frame principled and useful legal responses to the dilemmas with
which they are being confronted. Certainly courts
dealing with other kinds of medical decision-making conflicts have insisted
both upon much more rigorous procedural standards and upon significantly more
information.
Gallagher,
Prenatal Invasions and Interventions: What's Wrong with
Fetal Rights,
10 HARV. WOMEN's L.J. 9, 49 (1987).
n16 In at least one case, a
woman whose objection to a
caesarean
delivery had been overridden by a court went into hiding and gave birth to her child
vaginally.
See Rhoden,
supra,
74 CAL. L. REV. at 1959-1960. In another case,
"a 16-year-old
pregnant girl in Wisconsin has been held in secure detention for the sake of her
fetus because she tended to be on the run and to lack motivation or ability to seek
prenatal care."
Obstetrical Interventions, supra, 316 NEW ENG. J. MED. at 1195.
In this case
A.C.'s court-appointed attorney was unable even to meet with his client before the
hearing. By the time the case was heard,
A.C.'s condition did not allow her to be present, nor was it reasonably possible
for the judge to hear from her directly. The factual record, moreover, was
significantly flawed because
A.C.'s medical records were not before the court and because Dr. Jeffrey Moscow,
the physician who had been treating
A.C. for many years, was not even contacted and hence did not testify. n17 Finally,
the time for legal preparation was so minimal that neither the court nor
counsel mentioned the doctrine of
substituted judgment, which -- with benefit of briefs, oral arguments, and above all, time
-- we now deem critical to the outcome of this case. We cannot be at all
certain that the trial judge would have reached the same decision if the
testimony of Dr. Moscow and the abundant legal scholarship filed in this court
had been meaningfully available to him, and if there had been enough
time for him to consider and reflect on these matters as a judge
[*1249] optimally should do. n18
n17 In an affidavit filed after the hearing, Dr. Moscow said that if he had
been notified of the proceedings, he would have come to the hospital
immediately and would have testified that a
caesarean section was medically inadvisable
both for
A.C. and for the
fetus. Dr. Moscow also viewed the hospital's handling of
A.C.'s case as deficient in several other significant respects. In these
circumstances we think it unfortunate that Dr. Moscow was not called by
representatives of the hospital and made available to the court when the
hospital decided to seek judicial guidance.
[**42]
n18 Although we appreciate the force of Judge Belson's plain error analysis, to
which we would ordinarily be sympathetic, we think it somewhat harsh to
preclude a party from making additional arguments on appeal in a case such as
this, in which there was virtually no time to prepare for the hearing below.
In the previous section we discussed the right of an individual to accept or
reject
medical treatment. We concluded that if a
patient is competent and has made an
informed decision regarding the course of her
medical treatment, that decision will control in virtually all cases. Sometimes, however, as our
analysis presupposes here, a once competent
patient will be unable to render an
informed decision. In such a case, we hold that the court must make a
substituted judgment on behalf of the
patient, based on all the evidence. This means that the duty of the court,
"as surrogate for the
incompetent, is to determine as best it can what choice that individual, if competent,
would make with respect to medical procedures."
In re Boyd, supra, 403 A.2d at 750 (citation omitted).
Under the
substituted judgment procedure, the court as decision-maker must
[**43]
"substitute itself as nearly as may be for the
incompetent, and . . . act upon the same
motives and considerations as would have moved her . . . ."
City Bank Farmers Trust Co. v. McGowan, 323 U.S. 594, 599, 89 L. Ed. 483, 65 S. Ct. 496 (1945). The concept of
substituted judgment, which has its roots in English law, was intended to allow courts to
make dispositions from the estates of
incompetents akin to those that the
incompetents would have made if competent.
See
Strunk v. Strunk, 445 S.W.2d 145, 147-148 (Ky. 1969). In recent times the procedure has been used to authorize organ
"donations" by
incompetents, as in
Strunk, and to prohibit the forced administration of
medical treatment to
incompetents, over
religious objections, where life itself was not at stake.
E.g.,
In re Boyd, supra;
United States v. Charters, supra. Most cases involving
substituted judgment, however, have arisen in the
"right to die" context, and the courts have generally concluded that
giving effect to the perceived decision of the
incompetent is the proper course, even though doing so will result in the
incompetent's death.
E.g.,
In re Spring, 380 Mass. 629, 405 N.E.2d 115 (1980);
In re Jobes, 108 N.J. 394, 529 A.2d 434
[**44] (1987);
In re Colyer, 99 Wash. 2d 114, 660 P.2d 738 (1983).
See generally Pollock, Life and Death Decisions: Who Makes Them and by What
Standards?,
41 RUTGERS L. REV. 505 (1989); Annotation,
Judicial Power to Order Discontinuance of Life-Sustaining Treatment,
48 A.L.R. 4th 67 (1986).
We have found no reported opinion applying the
substituted judgment procedure to the case of an
incompetent
pregnant
patient whose own life may be shortened by a
caesarean section, and whose
unborn child's chances of
survival may hang on the court's decision. Despite this precedential void, we conclude
that
substituted judgment is the best procedure to follow in such a case because it most
clearly respects the right of the
patient to bodily integrity. Thus we reaffirm our holding in
In re Boyd, in which we discussed how a
substituted judgment should be made when a
patient, although
incompetent, has previously expressed objections to treatment, and we observe that many of
the factors found relevant to discerning the
patient's choice in
Boyd are relevant here.
We begin with the proposition that the
substituted judgment inquiry is primarily a subjective one: as nearly as possible,
[**45] the court must ascertain what the
patient would do if competent.
In re Boyd, supra, 403 A.2d at 750;
In re Spring, supra, 380 Mass. at
, 405 N.E.2d at 119;
Saikewicz, supra, 373 Mass. at
, 370 N.E.2d at 431;
In re
Conroy, supra, 98 N.J. at
, 486 A.2d at 1229. Due process strongly suggests (and may even require) that
counsel or a guardian
ad litem should be appointed for the
patient unless the situation is so urgent that there is no time to do so.
Because it is the
patient's decisional rights which the
substituted judgment inquiry seeks to protect, courts are in accord
[*1250] that the greatest weight should be given to the previously expressed wishes of
the
patient. This includes prior statements, either written or oral, even though the
treatment alternatives at hand may not have been addressed.
See
In re Boyd, supra, 403 A.2d at 751-752 (absolute objections to treatment are highly relevant);
Brophy v. New England Sinai Hospital, Inc., supra, 398 Mass. at 427, 497 N.E.2d at 631;
In re Conroy, supra, 98 N.J. at
, 486 A.2d at 1229-1230;
In re Dorone, 349 Pa. Super. 59, , 502 A.2d 1271, 1278 (1985),
aff'd,
517 Pa. 3, 534
[**46] A.2d 452 (1987);
see also 1982 PRESIDENT'S COMMISSION REPORT,
supra, at 179. The court should also consider previous decisions of the
patient concerning
medical treatment, especially when there may be a discernibly consistent pattern of conduct or of
thought.
E.g.,
In re Boyd, supra, 403 A.2d at 751;
In re Conroy, supra, 98 N.J. at
, 486 A.2d at 1230;
In re Dorone, supra, 349 Pa. Super. at
, 502 A.2d at 1278;
see also 1983 PRESIDENT'S COMMISSION REPORT,
supra, at 133. Thus in a case such as this it would be highly relevant that
A.C. had
consented to intrusive and dangerous
surgeries in the past, and that she chose to become
pregnant and to protect her
pregnancy by
seeking treatment at the hospital's high-risk
pregnancy clinic. It would also be relevant that she accepted a plan of treatment which
contemplated
caesarean intervention at the twenty-eighth week of
pregnancy, even though the possibility of a
caesarean during the twenty-sixth week was apparently unforeseen. On the other hand,
A.C. agreed to a plan of palliative treatment which posed a greater danger to the
fetus than would have been necessary if she were unconcerned about her own
continuing
[**47] care. Further, when
A.C. was informed of the fatal nature of her illness, she was equivocal about her
desire to have the
baby.
Courts in
substituted judgment cases have also acknowledged the importance of probing the
patient's value system as an aid in discerning what the
patient would choose. We agree with this approach.
See
In re Boyd, supra, 403 A.2d at 751 (considering the
patient's adherence to
religious tenets);
Brophy v. New England Sinai Hospital, Inc., supra, 398 Mass. at 427, 497 N.E.2d at 631;
In re Roe, 383 Mass. 415, , 421 N.E.2d 40, 56-59 (1981);
In re Conroy, supra, 98 N.J. at
, 486 A.2d at 1230;
In re Dorone, supra, 349 Pa. Super. at
, 502 A.2d at 1278;
see also 1982 PRESIDENT'S COMMISSION REPORT,
supra, at 179. Most people do not foresee what calamities may befall them; much less
do they consider, or even think about, treatment alternatives in varying
situations. The court in a
substituted judgment case, therefore, should pay special attention to the known values and
goals of the incapacitated
patient, and should strive, if possible, to extrapolate from those values and goals
what the
patient's decision would be.
Although
[**48] treating physicians may be an invaluable source of such information about a
patient, the family will often be the best
source.
See, e.g., In re Jobes, supra, 108 N.J. at
, 529 A.2d at 445-446. Family members or other loved ones will usually be in
the best position to say what the
patient would do if competent. n19 The court should be mindful, however, that while in
the majority of cases family members will have the best interests of the
patient in mind, sometimes family members will rely on their own judgments or
predilections rather than serving as conduits for expressing the
patient's wishes. This is why the court should endeavor, whenever possible, to make an
in-person appraisal
"of the
patient's personal desires and ability for rational choice. In this way the court can
always know, to the extent possible, that the judgment is that of the
individual concerned and not that of those who believe, however
well-intentioned, that they speak for the person whose life is in the balance."
In re Osborne, supra, 294 A.2d at 374;
see also
John F. Kennedy Memorial Hospital, Inc. v. Bludworth, supra, 452 So. 2d at 926-927 ("Disagreement among the physicians
[*1251] or family members
[**49] or evidence of wrongful motives or malpractice may require judicial
intervention"). n20
n19 Nevertheless, when a court is called upon to make a decision or to sanction
one, it is frequently because there is a conflict as to treatment choice among
family members, physicians, or both. Were family members and physicians in
complete agreement, it is unlikely that a court would be brought into the
discussion.
n20 The family's primacy in aiding the court as surrogate decision-maker may be
subject to challenge for a variety of reasons. For example, grieving family
members may themselves be unable to make or communicate an
informed decision. There may also be conflicting interests, or family members may be inclined
for their own reasons to disregard what the
patient herself would want.
See 1982 PRESIDENT'S COMMISSION REPORT,
supra, at 183. On the other hand, we think it proper for the court to conclude that
the
patient might consider the needs of her family in making a treatment decision.
See In re Roe, supra, 383 Mass. at
, 421 N.E.2d at 58.
In short, to determine the subjective desires of the
patient, the court must consider the totality of the evidence, focusing
[**50] particularly on written or oral directions concerning treatment to family,
friends, and health-care professionals. The court should also take into account
the
patient's past decisions regarding
medical treatment, and attempt to ascertain from what is known about the
patient's value system, goals, and desires what the
patient would decide if competent.
See In re Conroy, supra, 98 N.J. at
, 486 A.2d at 1229-1230;
In re Dorone, supra,
349 Pa. Super. at
, 502 A.2d at 1278.
After considering the
patient's prior statements, if any, the previous medical decisions of the
patient, and the values held by the
patient, the court may still be unsure what course the
patient would choose. In such circumstances the court may supplement its knowledge
about the
patient by determining what most persons would likely do in a similar situation.
In re Boyd, supra, 403 A.2d at 751, citing
Saikewicz, supra, 373 Mass. at
, 370 N.E.2d at 430;
accord, 1983 PRESIDENT'S COMMISSION REPORT,
supra, at 135; 1982 PRESIDENT'S COMMISSION REPORT,
supra, at 180-181. When the
patient is
pregnant, however, she may not be concerned exclusively with her own welfare. n21 Thus
it
[**51] is proper for the court, in a case such as this, to weigh (along with all the
other factors) the mother's prognosis, the
viability of the
fetus, the probable result of
treatment or non-treatment for both mother and
fetus, and the mother's likely interest in avoiding impairment for her child together
with her own instincts for
survival.
Cf. In re Roe, supra, 383 Mass. at
, 421 N.E.2d at 57.
n21 According to the ACOG Ethics Committee Opinion,
supra note 13,
"the welfare of the
fetus is of the utmost importance to the majority of women; thus only rarely will a
conflict arise."
Additionally, the court should consider the context in which prior
declarations, treatment decisions, and expressions of personal values were
made, including whether statements were made casually or after contemplation,
or in accordance with deeply held beliefs.
See In re Conroy, supra, 98 N.J. at
, 486 A.2d at 1230;
In re Dorone, supra, 349 Pa. Super. at
, 502 A.2d at
1278;
In re Colyer, supra, 99 Wash. 2d at
, 660 P.2d at 748. Finally, in making a
substituted judgment, the court should become as informed about the
patient's condition, prognosis, and treatment options
[**52] as one would expect any
patient to become before making a treatment decision.
See In re Conroy, supra, 98 N.J. at
, 486 A.2d at 1231. Obviously, the weight accorded to all of these factors will
vary from case to case.
C.
The Trial Court's Ruling
We reiterate that we cannot find the facts in this or any other case. That is
the function of trial judges, who can view the witnesses and discern from their
demeanor and testimony, rather than a cold written record, what the facts are.
In this case there is an understandable paucity of factual findings, which
necessarily limits our review. The trial court, faced with an issue affecting
life and death, was forced to make a
decision with almost no time for deliberation. Nevertheless, after reviewing
the transcript of the hearing and the court's oral findings, it is clear to us
that the trial court did not follow the
substituted judgment procedure. On the contrary, the court's specific finding before its
decision was communicated to
A.C. was as follows:
[*1252] The court is of the view that it does not clearly know what [A.C.'s] present views are with respect to the issue of whether or not the child
should live or die. She's presently
[**53] unconscious. As late as Friday of last week, she wanted the
baby to live. As late as yesterday, she did not know for sure.
The court did not go on, as it should have done, to make a finding as to what
A.C. would have chosen to do if she were competent. Instead, the court undertook to
balance the state's and L.M.C.'s interests in surgical intervention against
A.C.'s perceived interest in not having the
caesarean performed.
After
A.C. was informed of the court's decision, she
consented to the
caesarean; moments later, however, she
withdrew her consent. The trial court did not then make a finding as to whether
A.C. was competent to make the medical decision or whether she had made an
informed decision one way or the other. Nor did the court then make a
substituted judgment for
A.C. Instead, the court said that it was
"still not clear what her intent is" and again ordered the
caesarean.
It is that order which we must now set aside. What a trial court must do in a
case such as this is to determine, if possible, whether the
patient is capable of making an
informed decision about the course of her
medical treatment. If she is, and if she makes such a decision, her wishes will control in
[**54] virtually all cases. If the court finds that the
patient is incapable of making an
informed consent (and thus
incompetent), then the court must make a
substituted judgment. This means that the court must ascertain as best it can what the
patient would do if faced with the particular treatment question. Again, in virtually
all cases the decision of the
patient, albeit discerned
through the mechanism of
substituted judgment, will control. We do not quite foreclose the possibility that a
conflicting state interest may be so compelling that the
patient's wishes must yield, n22 but we anticipate that such cases will be extremely
rare and truly exceptional. This is not such a case.
n22 Absolutes like
"never" should generally be avoided because
"the future may bring scenarios which prudence counsels our not resolving
anticipatorily."
Florida Star v. B.J.F., 491 U.S. 524, 109 S. Ct. 2603, 2608, 105 L. Ed. 2d 443 (1989).
Having said that, we go no further. We need not decide whether, or in what
circumstances, the state's interests can ever prevail over the interests of a
pregnant
patient. We emphasize, nevertheless, that it would be an extraordinary case indeed in
which a court might ever be justified in overriding
[**55] the
patient's wishes and authorizing
a major surgical procedure such as a
caesarean section. Throughout this opinion we have stressed that the
patient's wishes, once they are ascertained, must be followed in
"virtually all cases,"
ante at 1249, unless there are
"truly extraordinary or compelling reasons to override them,"
ante at 1247. Indeed, some may doubt that there could ever be a situation
extraordinary or compelling enough to justify a massive
intrusion into a person's body, such as a
caesarean section, against that person's will. Whether such a situation may someday
present itself is a question that we need not strive to answer here. We see no
need to reach out and decide an issue that is not presented on the record
before us; this case is difficult enough as it is. We think it sufficient for
now to chart the course for future cases resembling this one, and to express
the hope that we shall not be presented with a case in the foreseeable future
that requires us to sail off the
chart into the unknown. n23
n23 In particular, we stress that nothing in this opinion should be read as
either approving or disapproving the holding in
In re Madyun, supra. There are substantial factual differences between
Madyun and the present case. In this case, for instance, the medical interests of the
mother and the
fetus were in sharp conflict; what was good for one would have been harmful to the
other. In
Madyun, however, there was no real conflict between the interests of mother and
fetus; on the contrary, there was strong evidence that the proposed
caesarean would be beneficial to both. Moreover, in
Madyun the
pregnancy was at full term, and Mrs. Madyun had been in labor for two and a half days;
in this case, however,
A.C. was barely two-thirds of the way through her
pregnancy, and there were no signs of labor. If another
Madyun-type case ever comes before this court, its result may well depend on facts
that we cannot
now foresee. For that reason (among others), we defer until another day any
discussion of whether
Madyun was rightly or wrongly decided.
Ordinarily, when the factual record in a case is insufficient to support the
trial court's decision, we remand for additional findings. In this case,
however, a remand for supplemental findings would be inappropriate and futile
because the
caesarean has been performed and cannot be undone. The record is unclear as to whether
A.C. was ever competent, after being sedated, to make her own decision, and the
likelihood of marshaling further evidence now on this question is doubtful at
best. If the
substituted judgment procedure were to be followed, there is evidence going both ways as
to what decision
A.C. would have made, and we see no point in requiring the court now to make that
determination when it can have no practical effect on either
A.C. or L.M.C.
Accordingly, we vacate the order of the trial court and remand the case for
such further
proceedings as may be appropriate. We note, in doing so, that the trial court's
order allowing the hospital to perform the
caesarean section was presumptively valid from the date it was entered until today. What
the legal effect of that order may have been during its lifetime is a matter on
which we express no opinion here.
Vacated and remanded.
[*1259contd]
[EDITOR'S NOTE: The page numbers of this document may appear to be out of
sequence; however, this pagination accurately reflects the pagination of the
original published documents.]
APPENDIX
SUPERIOR COURT
[**57] OF THE DISTRICT OF COLUMBIA CIVIL DIVISION
IN RE MADYUN
Misc. No. 189-86
Diane Weinroth for parents.
Martin R. Baach for
fetus.
Richard S. Love, Assistant Corporation Counsel, for the District of Columbia.
LEVIE,
Associate Judge:
Upon the oral petition of D.C. General Hospital ("Hospital") for an order that the Hospital be authorized to perform a
Caesarean section upon Ayesha Madyun to
deliver her
fetus, a hearing was convened at the Hospital at 10:30 p.m. on July 25, 1986. Diane
Weinroth, Esq.,
accepted appointment by the Court to represent the parents, Yahya and Ayesha
Madyun; Martin R. Baach, Esq., accepted appointment by the Court to be
guardian ad litem for the
fetus; and Assistant Corporation Counsel Richard S. Love represented the Hospital.
[*1260] Testimony was taken from Dr. John Cummings, Chief Resident on the Georgetown
University Obstetrical/Gynecological service, as well as from Mr. and Mrs.
Madyun. After hearing testimony and arguments of counsel, the Court orally
granted the Hospital's petition at 1:05 a.m., on July 26 and then denied the
parents' motion for a stay. n1 A telephonic appeal was heard and the decision
of this Court was affirmed (Pryor, C.J.
[**58] and Terry, J.). n2
n1 Although the Court prepared interim findings of fact and conclusions of law
on July 26, 1986, this Memorandum Opinion and Order is a more detailed
explication of the basis
for the Court's decision in accordance with the testimony adduced at the
hearing.
n2 The interim Findings and Conclusions of the Court were read to the Court of
Appeals and are attached hereto.
The mother of the
infant, Ayesha Madyun, is a 19-year-old
woman experiencing her first
pregnancy. She arrived at the Hospital on July 25, 1986, at approximately 1:45 a.m.,
after previously having been to Greater Southeast Community Hospital for an
unknown period of time. Upon admission to the Hospital, it was determined that
she was at term; she related that her
membrane had ruptured (water broken) some 48 hours earlier. n3 Mrs. Madyun indicated
throughout the entire time prior to the performance of the
Caesarean section that she wanted a natural
delivery. By 11:00 a.m. on July 25 she was seven centimeters dilated. When the hearing
convened at the Hospital almost 12 hours later, Mrs. Madyun was still dilated
at seven centimeters.
By the time of the hearing her contractions were
[**59] coming at intervals approximately five minutes apart. n4
Mr. and Mrs. Madyun met with the medical staff at approximately 4:00 p.m. and
again at 8:00 p.m. on July 25 to discuss the available options. When no
progress toward completing a natural (vaginal)
delivery was evidenced by 8:00 p.m., it was recommended that Mrs. Madyun consent to
undergo
Caesarean section to
deliver the
fetus. Consent to perform a
Caesarean section was denied. When questioned during the hearing, some four hours after
the 8:00 p.m. conference, Mrs. Madyun reiterated her preference for a natural
delivery and
expressed her belief that a
Caesarean section was not necessary. She understood the risks of
infection to the
fetus resulting from continuation of labor without
delivery, but sought to explain her decision to decline a
Caesarean section by reference to her
religious beliefs. Mrs. Madyun testified that a Muslim
woman has the right to decide whether or not to risk her own health to eliminate a
possible risk
[**60] to the life of her undelivered
fetus. n5
During a separate, longer interview, Mr. Madyun explained that his refusal to
consent to the performance of a
Caesarean was based upon his belief that there was no demonstrable danger at that point
to either Mrs. Madyun or the
fetus. n6 For example, Mr. Madyun stated that there were no signs of the onset of
sepsis except
a slightly elevated temperature. Further, it was his belief that there had been
insufficient opportunity for his wife to
deliver vaginally. He also expressed his view that the Hospital had failed to permit
Mrs. Madyun to engage in certain potentially natural acts of assisting
delivery, such as standing up or walking around. Mr. Madyun similarly explained that a
Muslim
woman, confronted with a life or death situation, had the right to decide whether to
risk her health or life to
save an
unborn
fetus. The risks of
infection and possible death to the
fetus in the absence of a
Caesarean section were likewise explained to and understood by Mr. Madyun.
[*1261] The medical basis for the Hospital's emergency oral petition was presented
through the testimony of Dr. Cummings. After receiving his M.D. degree at the
George Washington University, Dr.
Cummings took a two-year general
surgery program at Emory University. This was followed by a four-year period as a
physician in the U.S. Navy Medical Corps. He is now in the final year of a
four-year obstetrical/gynecological program at Georgetown, and is Chief
Resident of the Georgetown Service at the Hospital.
According to Dr. Cummings, normal labor for an uncomplicated first
pregnancy is 10-15 hours. For a
woman in her first
pregnancy to remain dilated at seven centimeters for 12 hours was, in his opinion,
abnormal. n7 Normal obstetrical procedures with a term
pregnancy call for
delivery of a
baby within 24 hours of the
membrane's rupture.
n7 None of counsel present at the hearing questioned the competence or
expertise of Dr. Cummings. Based upon Dr. Cummings' education and
experience, the Court was satisfied with respect to the
doctor's expertise and competence.
Failure to adhere to this procedure increases the risk of chorioamnionitis
(inflammation of the
fetal placental
membranes) which
[**62] can lead to
fetal
sepsis (infection). This, in turn, can result in the death of the
baby or brain damage.
Sepsis can start at any time 24 hours after rupture of the
membrane. The likelihood of
infection to the
baby (fetus) increases greatly in proportion to the length of time between rupture of the
membrane and
delivery of the
baby. It was the opinion of Dr. Cummings that each passing hour increased the risk
of
fetal
sepsis.
As Dr. Cummings explained, one of the most insidious dangers in the situation
presented by Mrs. Madyun was that
sepsis could begin without detection and advance to the point of causing the death of
the
baby with little, or possibly no, warning. Prior to birth, it is difficult to
determine the commencement of
fetal
sepsis.
While there are certain symptoms of
fetal
sepsis (maternal temperature, foul smelling discharge, and
fetal heartbeat), evidence of them may not become apparent until the
baby is already septic. n8 Given the fact that, by the time of hearing, Mrs.
Madyun's
membrane had ruptured between 60 and 70 hours earlier, Dr. Cummings believed that the
risk of
fetal
sepsis here was 50-75%. n9 In contrast, the risk to Mrs. Madyun undergoing a
Caesarean section
[**63] was said to be 0.25%.
n8 The only symptom present here was a slightly elevated maternal temperature.
n9 Excluding any examinations at Greater Southeast, Mrs. Madyun had experienced
ten vaginal exams since admission to the Hospital. The number of examinations
also increases the risk of introducing
infection into the body.
Against this background, the Hospital was seeking authorization to
deliver the
baby by the most expedient means -- a
Caesarean section. n10 On behalf of the
unborn child, Mr. Baach joined in the Hospital's request that authorization for the
Caesarean section be granted.
n10 Realizing that normal obstetrical criteria calls for
delivery within 24 hours of rupture, and the unchanged degree of dilation for almost 12
hours, Dr. Cummings believed that protrusion (a labor inducer) was not
appropriate.
When a competent adult declines
medical treatment on
religious grounds, the Court is obligated to respect this decision, even in a life or
death situation, unless the state can
"demonstrate a compelling interest that would justify overriding the
individual's choice."
In re Lucille Boyd, 403 A.2d 744, 748 (D.C. 1979);
In re Osborne, 294 A.2d
[**64] 372, 374 (D.C. 1972);
Canterbury v. Spence, 150 U.S. App.D.C. 263, 271, 464 F.2d 772, 780,
cert. denied,
409 U.S. 1064, 34 L. Ed. 2d 518, 93 S. Ct. 560 (1972);
In the
Matter of B.B.H., 111 Wash.L. Rep. 1929, 1934 (D.C. Super. Ct., Oct. 6, 1983) (Schwelb, J.);
In the
Matter of Bentley, 102 Wash.L. Rep. 1221, 1225 (D.C. Super. Ct., June 17, 1974) (Burka, J.);
John F. Kennedy Memorial Hospital v. Heston, 58 N.J. 576, 279 A.2d 670, 674 (1971); cf.
Application of the President and Directors of
[*1262] Georgetown College, Inc., 118 U.S. App.D.C. 80, 331 F.2d 1000 (1964).
In the case of children, the state
acting as
parens patriae has the ability, in appropriate situations, to
"restrict" a parent's control of a child, even where the parent's claim to control is
founded upon
religious rights or a more generalized
"right[] of parenthood. . . ."
Prince v. Massachusetts, 321 U.S. 158, 166, 88 L. Ed. 645, 64 S. Ct. 438 (1944). Thus, where the requisite factual predicate has been established, courts have
ordered
medical treatment of children over parental objections.
See e.g., In the
Matter of B.B.H., 111 Wash.L. Rep. 1929 (Four hour old
infant);
In the
Matter of Adam L., 111 Wash.L. Rep. 25 (D.C. Super. Ct., Jan. 6, 1983) (Schwelb,
[**65] J.) (2 year old);
Custody of a Minor, 375 Mass. 733, 379 N.E.2d 1053 (1978) (26 month
old
infant);
In the
Matter of Kevin Sampson, 37 A.D.2d 668, 323 N.Y.S.2d 253 (1971) (16 year old). With both children and adults, therefore, the question of the
state's
"compelling interest" is a crucial factor to be determined.
Counsel for the parents, while not challenging these general propositions of
law, questioned whether consideration of the state's interest affecting a child
already born applies with the same force to an
unborn child. Under the facts here, the answer is yes.
The state has an
"important and legitimate interest in protecting the potentiality of human life."
Roe v. Wade, 410 U.S. 113, 162, 35 L. Ed. 2d 147, 93 S. Ct. 705 (1973). At the point of
"viability" n11 the state's interest becomes
"compelling"
id. at 163. To be sure, by the third trimester the state's intent
"become[s] sufficiently
compelling to justify unduly burdensome state interference with the
woman's constitutionally protected privacy interest."
Beal v. Doe, 432 U.S. 438, 446, 53 L. Ed. 2d 464, 97 S. Ct. 2366 (1977). A
"compelling interest" of the state may likewise justify overriding
religious convictions in cases of
unborn
infants.
In re Osborne, 294
[**66] A.2d at 374;
Jefferson v. Griffin Spalding County Hospital Authority, 247 Ga. 86, 274 S.E.2d 457 (1981) (per curiam) (unborn
infant);
Raleigh Fitkin-Paul Morgan Memorial Hospital v. Anderson, 42 N.J. 421, 201 A.2d 537 (per curiam),
cert. denied,
377 U.S. 985, 12 L. Ed. 2d 1032, 84 S. Ct. 1894 (1964) (unborn
infant);
In the
Matter of Application of Jamaica Hospital, 128 Misc.2d 1006, 491 N.Y.S.2d 898 (Sup. Ct. 1985) (unborn
infant).
n11
Viability is when the
fetus
"is, potentially able to live outside the mother's womb, albeit with artificial
aid. . . ." (footnote omitted).
Roe v. Wade, 410 U.S. at 160.
Because Mrs. Madyun was at term, there was no issue as to
viability. All that stood between the Madyun
fetus and its independent existence, separate from its mother, was, put simply, a
doctor's scalpel. In these circumstances, the life of the
infant inside its mother's womb was entitled to be protected.
See e.g.,
Jefferson v. Griffin Spalding, 274 S.E.2d at 460;
Raleigh Fitkin-Paul Morgan Mem. Hosp. v. Anderson, 201 A.2d at 538;
In re Appl. of Jamaica Hosp., 491 N.Y.S.2d at 989-900.
In
Jefferson v. Griffin Spalding County Hosp. Auth., 247 Ga. 86, 274 S.E.2d 457 (1981) the Georgia
[**67] Supreme Court denied a request for a stay of an order of the Superior Court
that a mother submit to a
Caesarean section. There, the mother who was at term had a condition which made it
"a 95% certainty that the child cannot survive natural childbirth (vaginal
delivery)."
Id. at 458. Indeed, the mother's chances of surviving a vaginal
delivery were only 50%.
Id. Asserting
religious beliefs, the mother refused to submit to the C-section or to any blood
transfusion.
Id. The trial court, however, found
"'that the state has an interest in the life of this
unborn, living human being. The Court finds that the
intrusion into the life of [the parents] is outweighed by the duty of the state to
protect a living,
unborn human being from
meeting his or her death before being given the opportunity to live.'"
Id. at 460. The Georgia Supreme Court denied the parents' request for a stay.
Id. n12
n12
See also,
Raleigh Fitkin-Paul Morgan Mem. Hosp. v. Anderson, 42 N.J. 421, 201 A.2d 537 (blood transfusion necessary to
save life of mother and
unborn
infant (32 wks.) ordered over
religious objections);
Application of Jamaica Hosp., 128 Misc. 2d 1006, 491 N.Y.S.2d 898 (blood transfusion ordered over
religious objections to stabilize condition of mother and
save
unborn child that was not yet
viable).
[*1263] In the instant case, the Court was confronted with a 50-75% risk of
infection for the
infant, in view of the extended period of time (60 hours) since
rupture of the mother's
membrane. The testimony adduced at the hearing was that the onset of
infection to the
infant could begin and progress to a potentially fatal point before symptoms of the
infection became evident. To have required the
doctors to continue a
"wait and see" attitude could have had potentially fatal consequences to the
infant. It is one thing for an adult to gamble with nature regarding his or her own
life; it is quite another when the gamble involves the life or death of an
unborn
infant.
The Court had before it parents who, in part, refused a
Caesarean section on the basis of
religious beliefs. Although both parents impressed the Court as sincere, it was evident
that the stronger basis for their individual decisions was the belief that the
surgical procedure was not necessary and that additional steps could be taken
to enhance the possibility of a vaginal
delivery. Neither parent, however, is a trained physician. To ignore the undisputed
opinion of a skilled and trained physician to indulge the desires of the
parents
[**69] where, as here, there is
a substantial risk to the
unborn
infant, is something the Court cannot do. n13 Indeed, even if the
religious beliefs of the parents were the primary or sole reason for refusing a
Caesarean, the state had a compelling interest in ensuring this
infant could be born.
See
Jefferson v. Griffin Spalding, 274 S.E.2d at 460.
"Parents may be free to become martyrs themselves. But it does not follow they
are free, in identical circumstances, to make martyrs of their children before
they have reached the age of full and legal discretion when they can make that
choice for themselves."
Prince v. Massachusetts, 321 U.S. at 170. On these facts, the parents may not make a martyr of their
unborn
infant.
n13 A case such as this puts the Hospital and its staff in an awkward position.
Hospitals exist to aid the sick and the injured. The medical and nursing
professions are consecrated to preserving
life. That is their professional creed. To them, a failure to use a simple,
established procedure in the circumstances of this case would be malpractice,
however the law may characterize that failure because of the
patient's private convictions. A surgeon should not be asked to operate under the strain
of knowing that a transfusion may not be administered even though medically
required to
save his
patient. The hospital and its staff should not be required to decide whether the
patient is or continues to be competent to make a judgment upon the subject, or
whether the release tendered by the
patient or a member of his family will protect them from civil responsibility.
John F. Kennedy Mem. Hosp. v. Heston, 279 A.2d at 673.
Accordingly, the Hospital is ordered to take such steps as medically indicated,
including but not limited to a C-section, to preserve and protect the birth and
safety of the
fetus.
Interim Findings and Conclusions
Upon
petition of D.C. General Hospital for an order that the Hospital be authorized
to perform a
Caesarean section upon Ayesha Madyun (mother) to
deliver her
fetus and having heard from Mr. and Mrs. Madyun, counsel for the Hospital, the
parents, the guardian
ad litem and Dr. Cummings:
The Court finds that Mrs. Madyun's
membrane ruptured at noon on July 23, 1986 and has been so far more than 60 hours; for
almost 12 hours she has remained dilated at 7 cm.; that Dr. Cummings has given
his medical opinion the
fetus is at risk of
fetal
sepsis (infection) if a C-section is not performed at once [and that], the risk of
sepsis increases. By contrast the risk to the mother of a C-section is at.25%. The
basis for the parents' objection is a
religious belief that, as Muslims, it is the choice of the mother to decide between her
health and body and that of the
fetus. Dr. Cummings said that normal medical practice
calls for
delivery of a
baby within 24 hours of the rupture of
[**71] the
membrane.
[*1264] There is no way to determine whether
sepsis has or will begin and it can begin and progress to such a stage that death
could be imminent. Mrs. Madyun's labor pattern is aberrant according to Dr.
Cummings. He also said the likelihood of
infection is proportional to the time since the time of rupture and that
sepsis can start any time after rupture. The risk of
sepsis is between 50-75% under these conditions. No alternative medical procedures
are available at this time; under the present circumstances, according to Dr.
Cummings,
sepsis can be fatal or lead to brain damage. Moreover, Dr. Cummings testified that
there may be no signs of
sepsis before it progresses to the point of causing death.
Given the significant risks to the
fetus versus the minimal risks to the mother, the Court concludes that there is a
compelling interest to intervene and protect the life and safety of the
fetus.
Accordingly, the Hospital is ordered to take such steps as are medically
indicated, including but not limited to a C-section, to preserve and protect
the birth and safety of the
fetus.
The findings and conclusions are prepared for expeditiously facilitating a
decision under the circumstances.
[**72] The Court reserves the right to supplement these based upon the record and
tape recordings. The parties can submit pleadings if they desire.
1:05 a.m. 7/26/86
Richard A. Levie
Associate Judge
Affirmed per Judges Pryor and Terry 2:08 a.m. 7/26/86
CONCURBY: BELSON (In Part)
DISSENTBY: BELSON (In Part)
DISSENT:
[*1253contd]
[EDITOR'S NOTE: The page numbers of this document may appear to be out of
sequence; however, this pagination accurately reflects the pagination of the
original published documents.]
BELSON, Associate Judge, concurring in part and dissenting in part:
I agree with much of the majority opinion, but I disagree with its ultimate
ruling that the trial court's order must be set aside, and with the narrow view
it takes of the state's interest in preserving life and the
unborn child's interest in life.
More specifically, I agree with the guidance the opinion affords trial judges
as to how to approach a case like this, first determining the mother's
competency to make an
informed decision whether to have a
caesarean
delivery and, if the mother is not competent, then making a
substituted judgment for the mother. I also agree that, with respect to surgical
procedures, the
pregnant
woman's wishes, either as stated expressly or as discerned through
substituted judgment, should ordinarily be respected and carried out unless there
[**73] are compelling reasons to override them.
I disagree, however, with the majority's holding, opinion at slip
op. p. 37, that the trial judge erred in failing to determine competency. I
think it quite clear from the record that Judge Sullivan found
A.C.
incompetent. The court heard testimony that
A.C. was
"heavily sedated" and that there could be no
"meaningful conversation with her at this point," and that any reduction of her medication to
"permit recovery of enough cognitive function on her part" to enable the physicians to get a sense of her preference regarding therapy
might have the effect of hastening her death. Given the testimony that
A.C. was unable to communicate her attitude toward the proposed
surgery, if she had one, I submit that the most reasonable reading of the record is
that the judge found her
incompetent when he stated:
"The Court is of the view that it does not clearly know what [A.C.'s] present views are with respect to the issue of whether or not the child
should live or die." A short time later, after hearing testimony about the sedated
A.C.'s apparent reaction to the court's decision
regarding
surgery, the trial judge said:
"The Court is still not clear what her intent
[**74] is." I think the most reasonable reading of the judge's findings made under
emergency circumstances remains that
A.C. was found not competent either to arrive at or to communicate an
informed decision about the proposed procedure. It is clear that the trial judge, at the very
least, made a finding that was, under the majority's explanation of appropriate
procedures, sufficient to move the inquiry forward to the
substituted judgment stage.
I disagree also with the holding that the trial judge committed reversible
error in failing to make a determination of
substituted judgment. No party explicitly asked that he should do so, and the majority
[*1254] acknowledges that it could find no reported opinion applying the
substituted judgment procedure to the case of an
incompetent
pregnant
patient in
A.C.'s situation. Majority opinion at slip op. p. 31. Under the circumstances, the
trial judge's failure to
exercise
substituted judgment
sua sponte can hardly be deemed the sort of egregious error that must be present before a
trial court can be reversed on a plain error standard.
See
Woodard v. City Stores Co., 334 A.2d 189, 192 (D.C. 1975).
For the same reason, I disagree with the holding of the majority that
[**75] Judge Sullivan erred in proceeding to a balancing analysis, weighing the
rights of
A.C. against those of the state and the
unborn child without first having found either a competent refusal or a finding of
nonconsent through
substituted judgment. Majority opinion at slip op. p. 27. No party argued that the court
should not proceed to such a balancing analysis. n1 Because I disagree with
this pivotal finding of error, I would affirm rather than reverse.
n1 In the telephone hearing
before a division of this court that followed immediately after the trial
judge's ruling, counsel for the mother acknowledged that balancing was
appropriate.
Another aspect of the majority opinion deserves comment. Having determined that
the trial court must be reversed, the majority goes on to opine, in dictum,
that this particular case is not one of those
"extremely rare and truly exceptional" cases in which a
patient's wishes regarding the proposed
medical treatment can be overruled by reason of a compelling state interest (here, the interest
in protecting the life of the
viable
unborn child). This is dictum because, as the majority points out,
"we have no reason to believe that, if competent,
A.C. would or
[**76] would not have refused consent to a
caesarean." n2 Majority opinion at slip op. p. 27. That being the case, and the actual
application of the standard the majority adopts to the facts of this case not
being necessary to the majority's
determination to reverse, one must regard as dictum the majority's statement
that this would not be one of those rare cases in which compelling interests
might warrant overriding a mother's decision not to consent.
n2 In view of this statement, I find puzzling the majority's discussion at p.
1248,
et seq., of
"two additional arguments against overriding
A.C.'s objections to
caesarean
surgery." No such objections were found to exist.
I think it appropriate, nevertheless, to state my disagreement with the very
limited view the majority opinion takes of the circumstances in which the
interests of a
viable
unborn child can afford such compelling reasons. The state's interest in preserving human
life and the
viable
unborn child's interest in
survival are entitled, I think, to more weight than I find them assigned by the
majority when it states that
"in
virtually all cases the decision of the
patient . . . will control." Majority opinion at p. 1252. I would hold that
[**77] in those instances, fortunately rare, in which the
viable
unborn child's interest in living and the state's parallel interest in protecting human life
come into conflict with the mother's decision to forgo a procedure such as a
caesarean section, a balancing should be struck in which the
unborn child's and the state's interests are entitled to substantial weight.
It was acknowledged in
Roe v. Wade, 410 U.S. 113, 35 L. Ed. 2d 147, 93 S. Ct. 705 (1973), that the state's interest in potential human life becomes compelling at the
point of
viability. Even before
viability, the state has an
"important and legitimate interest in protecting the potentiality of human life."
Id. at 162. When approximately the third trimester of
pregnancy is reached (roughly the time of
viability, although with advances in medical science the time of
viability is being reached sooner and sooner), the state's interest becomes sufficiently
compelling to justify what otherwise would be unduly burdensome state
interference with the
woman's constitutionally protected privacy interest.
Beal v. Doe, 432 U.S. 438, 446, 53 L. Ed. 2d 464, 97 S. Ct. 2366 (1977). Once that stage is reached, the state
"may, if it chooses, regulate, and even proscribe, abortion except where it
[**78] is necessary, in appropriate medical judgment, for the preservation
[*1255] of the life or health of the mother."
Roe, supra, 410 U.S. at 165. In addressing this issue, it is important to emphasize, as does the majority
opinion, that this case is not about abortion, majority opinion at slip op. p.
22 n.9; n3 we are not discussing whether a
woman has the legal right to terminate her
pregnancy in its
early stages. Rather, we are dealing with the situation that exists when a
woman has carried an
unborn child to
viability. When the
unborn child reaches the state of
viability, the child becomes a party whose interests must be considered.
See King,
The Juridical Status of the
Fetus: A Proposal for Legal Protection of the
Unborn,
77 MICH. L. REV. 1647, 1687 (1979) (viability, not birth, the determinative moment in development for purpose of determining
when
fetus is entitled to legal protection).
n3 The majority opinion, however, oversimplifies matters when it states, p.
1245 n.9:
"The issue presented in this case is not whether
A.C. (or any
woman) should have a child but, rather, who should decide how that child should be
delivered." The cruel realities of the situation made the issue far more difficult. It
could better be stated as whether the
unborn child should face a greatly reduced chance of
survival
upon
post mortem
delivery occasioned by a decision to forgo a
caesarean procedure or whether, instead, the child should be afforded a probability of
living as a result of a surgical procedure that involved both some risk to
A.C. and an invasion of her bodily integrity.
Turning to the rights of the child, tort law has long recognized the right of a
living child to recover for injuries suffered when she was a
viable
unborn child.
See
Bonbrest v. Kotz, 65 F. Supp. 138 (D.D.C. 1946). In rejecting the notion that the
viable
unborn child is not an entity distinct from the mother, the court in
Bonbrest stated:
It has, if
viable, its own bodily form and members, manifests all the anatomical characteristics
of individuality, possesses its own circulatory, vascular and excretory systems
and is capable
now of being ushered into the visible world.
Id. at 141 (footnote omitted).
Bonbrest proved to be a landmark case. In
Greater Southeast Hospital v. Williams, 482 A.2d 394 (D.C. 1984), this court noted that
"every jurisdiction in the United States has followed
Bonbrest in recognizing a cause of action for prenatal injury, at least when the injury
is to a
viable
infant later born alive."
Id. at 396. We went on to hold in
Greater Southeast Hospital that a
viable
unborn child
is a person within the coverage of the wrongful death statute, D.C. Code
§ 16-2701 (1981):
Inherent in our adoption of
Bonbrest is the recognition that a
viable
fetus
[**80] is an independent person with the right to be free of prenatal injury. The
liability for prenatal injury recognized in
Bonbrest arises at the time of the injury. If a
viable
fetus is a
"person injured" at the time of the injury, then perforce the
fetus is a
"person" when he dies of those injuries, and it can make no difference in liability
under the wrongful death and
survival statutes whether the
fetus dies of the injuries just prior to or just after birth. To hold otherwise
would perpetuate the very evils the statutes were intended to prevent -- that
an injury would be inflicted for which no remedy existed and a tortfeasor would
escape liability by inflicting injury so severe that death results.
Id. at 397.
We concluded:
"In summary, having determined that a
viable
fetus is a person under the common law, it follows that injury to the
fetus resulting in death is actionable under our wrongful death and
survival statutes."
Id. at 398 (emphasis added).
The holdings in
Bonbrest and
Greater Southeast Hospital establish that for purposes that are, at least, relevant to this case, a
viable
unborn child is a
person at common law who has legal rights that are entitled to the
[**81]
protection of the courts. In a case like the one before us, the
unborn child is a
patient of both the hospital and any treating physician, n4 and the hospital or
physician may be liable to the child for the child's prenatal injury or death
if caused by
[*1256] their negligence.
See
Greater Southeast Hospital, supra;
Bonbrest, supra.
Without going into the difficult question of the extent to which an
unborn
viable child may be entitled to protection under the Fifth, the Fourteenth, or other
Amendments to the Constitution, n5 the already recognized rights and interests
mentioned above are sufficient to indicate the need for a balancing process in
which the rights of the
viable
unborn child are assigned substantial weight. This view is consistent with the decision of
the only appellate court which has heretofore considered this
issue. In
Jefferson v. Griffin Spalding County Hosp. Auth., 247 Ga. 86, 274 S.E.2d 457 (1981), the Supreme Court of Georgia denied a stay of an order authorizing a hospital
to perform a
caesarean section to which the mother did not consent. Concurring, Presiding Justice
Hill
[**82] described the way in which the outcome was reached in the following language:
In denying the stay of the trial court's order and thereby clearing the way for
immediate re-examination by sonogram and probably for
surgery, we weighed the right of the mother to practice her religion and to refuse
surgery on herself, against her
unborn child's right to live. We found in favor of her child's right to live.
n5 I recognize that the Supreme Court has held that the word
"person," as used in the Fourteenth
Amendment, does not include the
unborn.
Roe v. Wade, supra, 410 U.S. at 158. Nevertheless, this is a matter in which the policy of the law may evolve, and
in the elastic frames of due process and equal protection analysis under the
Fourteenth and Fifth Amendments, it may eventually be determined that
viable
unborn children are persons entitled, constitutionally, to protection of their
liberty, their property, and their very lives, even though they may not be
considered persons for some other purposes under the Constitution. Ultimately,
the question of whether a
viable
unborn child is considered a person under the Fifth and Fourteenth or other Amendments to
the Constitution for purposes of the right to survive is one of policy for the
courts.
As one commentator has pointed out, however, the right of the
viable
unborn child to legal protection does not depend upon such classification as a person.
King,
supra,
77 MICH. L. REV. at 1687.
[**83]
n6 The majority opinion states that
"Jefferson is of limited relevance, if any at all, to the present case." Majority opinion at p. 1243. I disagree. The Georgia courts balanced the
interest of the
unborn child in living against a competent mother's refusal to undergo a
caesarean section, and ruled in favor of the child. That some of the circumstances were
different from those in the case before us does not alter this most salient
feature of the case.
The balancing test should be applied in instances in which women become
pregnant and carry an
unborn child to the point of
viability. This is not an unreasonable classification because, I submit, a
woman who carries a child to
viability is in fact a member of a unique category of persons. Her circumstances differ
fundamentally from those of other potential
patients for medical procedures that will aid another person, for example, a potential
donor of bone marrow for transplant. This is so because she has undertaken to
bear another human being, and has carried an
unborn child to
viability. Another unique feature of the situation we address arises from the singular
nature of the dependency of the
unborn child upon the mother. A
woman carrying
[**84] a
viable
unborn child is not in the same category as a relative, friend, or stranger called upon to
donate bone marrow or an organ for transplant. Rather, the expectant mother has
placed herself in a special class of persons who are bringing another person
into existence, and upon whom that other person's life is totally dependent.
Also, uniquely, the
viable
unborn child is literally captive within the mother's body. No other potential beneficiary
of a surgical procedure on another is in that position.
For all of these reasons, a balancing becomes appropriate in those few cases
where the interests we are discussing
come into conflict. To so state is in no sense to fail to recognize the
extremely strong interest of each individual person, including of course the
expectant mother, in her bodily integrity, her privacy, and, where involved,
her
religious beliefs.
Thus, I cannot agree with the conclusion of the majority opinion that while we
"do not quite foreclose the possibility that a
[*1257] conflicting state interest may be so compelling that the
patient's wishes must yield . . . we anticipate that such cases will be extremely rare
and truly exceptional." Majority opinion at p. 1252. While it
[**85] is, fortunately, true that such cases will be rare in the sense that such
conflicts between mother and
viable
unborn child are rare, n7 I cannot agree that in cases where a
viable
unborn child is in the picture, it would be extremely rare, within that universe, to
require that the mother accede to the vital needs of the
viable
unborn child. n8
n7 The majority
opinion at p. 1251 n.21 quotes Opinion No. 55 of the Ethics Committee of the
American College of Obstetricians and Gynecologists as follows:
"the welfare of the
fetus is of the utmost importance to the majority of women; thus only rarely will a
conflict arise." Another observer described the attitude of most expectant mothers more
graphically:
"The vast majority of women will accept significant risk, pain, and
inconvenience to give their
babies the best chance possible. One obstetrician who performs innovative
fetal
surgery stated that most of the women he sees 'would cut off their heads to
save their
babies.'" Rhoden,
The Judge in the
Delivery Room: The Emergence of Court-Ordered Cesareans,
74 CALIF. L. REV. 1951, 1959 (1986).
n8 To the contrary, it appears that a majority of courts faced with this issue
have found that the state's compelling interest in protection of the
unborn child should prevail.
See
Noble-Allgire,
Court-Ordered Cesarean Sections,
10 J. LEGAL MED. 211, 236 (1989). I add that in mapping this uncharted area of the law, we can draw lines, and a
line I would draw would be to preclude the use of physical force to perform an
operation. The force of the court order itself as well as the use of the
contempt power would, I think, be adequate in most cases.
See
id. at 243.
I turn now to the impact of this decision on future cases in this jurisdiction.
Despite the majority's admonition that
"nothing in this opinion should be read as either approving or disapproving the
holding in
In re Madyun," 114 Daily Wash. L. Rptr. 2233 (D.C. Super. Ct. July 26, 1986), majority
opinion at p. 1252 n.23, I am concerned that the majority's emphasis on the
"extremely rare and
truly exceptional" nature of the circumstances in which the
unborn child's rights may prevail may move the law toward the extinguishment of the rights of
unborn children in cases like
In re Madyun. In that case, the trial court was faced with a situation in which an
expectant mother refused on
religious grounds to consent to a
caesarean section even though she was already in labor, and sixty hours had passed since
her
membrane had ruptured. Although the heavy risks of
infection and possible death to the
fetus in the absence of a
caesarean section were explained to both parents, they refused to consent to the
caesarean section. Because the child could not be delivered through the birth canal, the
child faced a serious and increasing danger of death or brain damage, and the
mother's health was
[**87] endangered as well.
After considering the facts and applicable law, the Superior Court granted the
hospital's request
for authorization to
deliver the
baby by the most expedient means -- a
caesarean section. n9 Counsel appointed to represent the
unborn child had also joined the hospital's request. A motions division of this court
denied a stay of the trial court's order. Pursuant to the trial court's order,
the
caesarean section was performed, and a healthy child was born and survives. n10
I next address the sensitive question of how to balance the competing rights
and interests of the
viable
unborn child and the state against those of the rare expectant mother who elects not to
have a
caesarean section necessary to
save the life of her child. n11 The indisputable view that a
woman carrying a
viable child has an extremely strong interest in her own life, health, bodily
integrity, privacy, and
religious beliefs necessarily requires that her election be
[*1258] given correspondingly great weight in the balancing process. In a case,
[**88] however, where the court in an exercise of a
substituted judgment has concluded that the
patient would probably opt against a
caesarean section, the court should vary the weight to be given this factor in
proportion to the confidence the court has in the accuracy of its conclusion.
Thus, in a case where the indicia of the
incompetent
patient's judgment are equivocal, the court should accord this factor correspondingly
less weight. The appropriate weight to be given other factors will have to be
worked out by the development of law in this area, and cannot be prescribed in
a single court opinion. Some considerations obviously merit special attention
in the balancing process. One such consideration is any danger to the mother's
life or
health, physical or mental, including the relatively small but still
significant danger that necessarily inheres in any
caesarean
delivery, and including especially any danger that exceeds that level. n12 The mother's
religious beliefs as they relate to the operation would appear to deserve inclusion in
the balancing process.
n11 For a thoughtful proposal for judicial standards in this area,
see Noble-Allgire,
supra,
10 J. LEGAL MED. at 244-48. And for a considered proposal for the standards to be used where the wishes of
the mother conflict with the interests of her
unborn child in the related area of
medical treatment of the
fetus,
see Comment,
The
Fetal
Patient and the Unwilling Mother: A Standard for Judicial Intervention,
14 PAC. L.J. 1065, 1093 (1983).
[**89]
n12 In
Thornburgh v. American College of Obstetricians & Gynecologists, 476 U.S. 747, 90 L. Ed. 2d 779, 106 S. Ct. 2169 (1986), a case involving abortion, the Supreme Court repeated its view that any
trade-off between the
woman's health and additional chances of
fetal
survival was undesirable.
Id. at 769. Whether this applies to
caesarean cases is unclear.
See Noble-Allgire, supra, 10 J. LEGAL MED. at 239.
On the other side of the analysis, it is appropriate to look to the relative
likelihood of the
unborn child's
survival. This could range from the situation in
Madyun where the full-term child's chances for
survival were apparently excellent, through a case like the one before us where the
unborn child's chances for
survival were from fifty to sixty percent, and on to cases where the child's chances
for
survival are less than even. The child's interest in being born with as little
impairment as possible should also be considered. n13 This may weigh
in favor of a
delivery sooner rather than later. The most important factor on this side of the scale,
however, is life itself, because the
viable
unborn child that dies because of the mother's refusal to have a
caesarean
delivery is deprived, entirely
[**90] and irrevocably, of the life on which the child was about to embark.
n13 Although avoiding impairment is a legitimate concern, it would be
inappropriate for a court to weigh against the
unborn child the possibility that it would be
"handicapped" or
"flawed" at birth because such persons can have lives and can enrich the lives of
others.
Turning to the specifics of this case, and reaching them as I, unlike the
majority, must because of my view that the court did not commit plain error in
bypassing
substituted judgment and performing a balancing test, I think this court cannot on this
record hold that the trial judge abused his discretion in striking the balance
he did.
Weighed in the balance against ordering the
procedure were two considerations that were central to the entire proceeding:
the invasive and serious nature of the proposed
surgery and the fact that such
surgery cannot ordinarily be performed without the consent of the
patient. Under the peculiar circumstances of this case, the influence of these factors
was diminished by the fact that it was not clear whether
A.C. would have
consented to the
surgery or not. Before events began to close in on her,
A.C. had agreed to
[**91] a
caesarean at twenty-eight weeks. Thus, she was not averse, in principle, to having that
particular type of
surgery. What was unresolved was whether she would consent to that
surgery at twenty-six and one-half weeks, when the
unborn child's chances of
survival were somewhat reduced and the chances of impairment to the child somewhat
enhanced. It was clear that she had intended all along to carry her
unborn child until the point the child could be successfully delivered, and she persevered
in that intention even when she knew she would not live long, if at all, after
her child was born. Even in the tragically difficult circumstances in which
A.C. found herself at the very time of the court's proceedings, she first appeared
in her sedated state to agree to the procedure and then apparently to disagree.
Under the circumstances, the court could deem these
[*1259] matters, usually most pertinent to a determination of
substituted judgment, to lessen the net weight of the factors that weighed against the
performance of the
surgery. n14 Also to be considered in the balance was the rather minimal, but
nevertheless undisputable, additional risk that
caesarean
delivery presented for the mother. n15
[**92]
n14 An additional factor, which is difficult to assess but probably deserves
some consideration, is that
caesarean
deliveries are quite common. According to the Bureau of the Census, the Department of
Commerce, 24.1 per cent of all births were by
caesarean section in the year 1986, the latest year for which it furnished statistics.
STATISTICAL ABSTRACT OF THE UNITED STATES 65 (109th ed. 1989). Without
detracting from the seriousness of the
caesarean procedure, its invasiveness, and the
somewhat greater risk it entails, it seems reasonable to consider the fact that
nearly a quarter of all births are
caesarean not only in the
substituted judgment analysis but also in the balancing analysis that should resolve a
conflict between mother and
unborn child.
n15 I note that there was no evidence in this case that the
caesarean procedure was likely to shorten
A.C.'s life. Although the trial judge alluded in his findings to testimony to that
effect, he was apparently referring to argument of counsel rather than
testimony. After the judge's findings were made, the record was reopened to
receive information from Dr. Hamner who had just spoken to
A.C. In reporting that she seemed more lucid and had three times answered that she
assented to a
caesarean
delivery, he said he had asked her if she realized that she
"may not survive the surgical procedure." Because Dr. Hamner had already testified that in his opinion
A.C. had less than twenty-four
hours to live, and because he presumably was concerned with obtaining the
consent of a
patient informed of even those risks that were less than probable, this cannot be
deemed the statement of an opinion that the
surgery would probably shorten
A.C.'s life.
Turning to the interest of the
unborn child in living and the parallel interest of the state in protecting that life, the
evidence indicated that the child had a fifty to sixty percent chance of
survival and a less than twenty percent chance of entering life with a serious handicap
such as cerebral palsy or mental retardation. The evidence also showed that a
delay in delivering the child would have increased the likelihood of a
handicap. In view of the record before Judge Sullivan, and on the basis that
there had been no plain error in not applying the sort of
substituted judgment analysis that we for the first time mandate in today's ruling, I
think it cannot be said that he abused his discretion
in the way he struck the balance between the considerations that favored the
procedure and those that went against it. n16
n16 The majority states that
"a remand for supplemental findings would be inappropriate and futile because
the
caesarean has been performed and cannot be undone" and remands for
"such further proceedings as may be appropriate." Majority opinion at p. 1253. Yet one of the two grounds the majority assigns
for nonmootness is that
"resolution of the legal issues might affect a separate action, actual or
prospective, between the parties." Majority opinion at pp. 1241-1242. The trial judge who heard the testimony is
still available, and a transcript of the testimony has been prepared. The
evidence would support either a finding that
A.C.'s
substituted judgment would be to undergo the
surgery or a finding to the contrary. Because we have held the case not moot, I would
remand for findings on that issue.